Emma Vincent Pulmonary Rehabilitation & Respiratory Nurse Specialist
This regional specialist network group was founded 20 years ago. Today was my rst meeting. The group is an opportunity to share latest developments in local nursing innovation. The education is provided via formal presentation but with an informal atmosphere that encourages transparency and healthy debate. It is also a fantastic opportunity to network with many different types of respiratory nurses. Today there was a mix of COPD care, palliative, ILD, formal education, integrated care, community and secondary care nurses.
The meeting had a very positive spin attached. As we shared practice and patients experiences we spoke of how some of the extensions of our role appeared to have a visible positive effect. COPD, though considered a chronic, debilitating and sometimes fatal disease, we felt could be managed, controlled and slowed down. In essence, many of us there today felt as though we were making a difference.
Our chair, Jane Scullion (Respiratory Nurse Consultant) opened the meeting with the hot topic of co-morbidities. We had all noted the drive towards generic teams managing breathlessness. There was also discussion around the provision of care for those patients with heart failure, overlaps had been seen in areas such as pulmonary rehabilitation. Jane also mentioned the recent talk of ACOS (Asthma COPD Overlap Syndrome) and the implications that had upon patient care and health care provision.
1 Tuesday, 27 May 2014
At todays meeting I also played my own heart strings. I presented Breathing space for carers. For some time I have felt this to be of great importance for the provision of compassionate holistic care. http://www.scribd.com/doc/226372615/Breathing-space-for-carers
Many, if not all of the nurses today had something to add on this topic. I was both humbled and touched by stories they shared of their patients and carers. In particular where patients had felt they had lost the role of wife or daughter to become carer. We were reminded today of the importance of referring carers for a Carer Assessment and of the positive impact we could have upon improving quality of life by effectively signposting to other services. Caring for our carers may well be an extension of our role but we all felt that it was integral to the compassionate care we provide.
The second half of the meeting looked at local and national initiatives to encourage Self-Management for patients with COPD. There were expressed concerns today of the over use in rescue medications, with particular concern given to the high doses of steroids being taken by some patients. We discussed local tele-health projects, the barriers and facilitators of on-line self- management plans for the elderly and the denitions of self-managing.
In reality our patients have been self-managing for years, their way of coping may contradict nursing advice or adhere to it. These new innovations seek to educate, support and reassure our patients, and are an adjunct to nursing care, not a replacement. Self-management is a way of aiding a patients can-do (self- efcacy) mechanism in coping with their disease and its symptoms. It is a process of promoting a long-term positive behavioural change that is orientated around the patients need.
2 Tuesday, 27 May 2014
Professional networks like today encourage peer support and enhances learning opportunities in treating patients with COPD. Shared knowledge encourages compassionate evidence based care. Something all of our patients, and their carers deserve.
Improving Patient Outcomes Through Palliative Care Integration in Other Specialised Health Services - What We Have Learned So Far and How Can We Improve
Efficacy of Retraining Diaphragm by Proprioceptive Neuromuscular Facilitation Versus Diaphragmatic Breathing Exercises in Reducing Dyspnoea in The Copd Patients
International Journal of Innovative Science and Research Technology