PsychosisSelfCareJune22 V2D
PsychosisSelfCareJune22 V2D
PsychosisSelfCareJune22 V2D
l a s t e d i t e d J u Ly 2 012
Table of Contents
About This Toolkit . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
What Is Psychosis? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
Managing Stress . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 27
Solving Problems . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31
Understanding Cognition . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49
Preventing Relapse . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 65
Congratulations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84
Credits . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 113
2 Table of Contents
About This Toolkit
Psychosis can be a disruptive, confusing, and frightening experience. Hearing
voices or thinking unusual or disturbing thoughts is common in psychosis. Having
psychosis makes it difficult to figure out what is really happening and what may be
a trick of the mind. Psychosis often prevents people from doing the things they used
to dosuch as going to work or school and enjoying time with friends and family.
This toolkit is meant to help you learn skills you can use to:
1. Manage symptoms of psychosis
2. Move forward and enjoy your life
Learning new skills is not easy. Its important that you have somebody who can
support you in the learning process. This is your Support Person.
Think of who might best be able to help support you in learning these skills.
Support
Person
Your Support Person might be a:
Health professional
Family member
Close friend
Pick someone you feel comfortable with and can trust. You may choose to have a few
different people support you. Some of the skills in this toolkit will be easier to learn
and practice if you have more than one Support Person.
One simple approach is to make use of a day planner or calendar where hours,
days, or weeks are blocked off to represent time spent working on various toolkit
sections. For example, it could be your plan to work on the Setting Goals and
Moving Forward section for two weeksperhaps two times a week for 30 minutes
each time. Many people find it gratifying to look in their day planner and be able
to cross off items on their list of goals as they are completed.
This toolkit has quite a few worksheets and forms to complete. You may want to fill
out some of the worksheets more than once. This could occur, for example, when
a new problem arises, and you want to do the problem-solving worksheet again to
work on the new problem. Or, it might happen when you change or add to your list
of goals.
Other times, a worksheet can be used to track strategies from the toolkit as you
try them out. For example, in the Understanding Cognition section, a number of
different strategies are listed in the What Can I Do? sub-sections. Writing down
which strategies you try can help keep track of your choices.
Progress Form
area r at i n g s t r at e g y r at i n g a f t e r r at i n g a f t e r
to R at e before used 2 weeks 4 weeks
Social
connections
8 Stopped
Deep breath-
doing the
Relaxing 9 ing every day 7
exercises
for 15 minutes
after 2 weeks
Psychosis is more common than people think. About 3% of all people experience
psychosis at some point in their lives. Many health disorders can include psychosis:
schizophrenia, bipolar disorder, severe depression, a bad reaction to surgery, and
others. You dont need to know all about these medical diagnoses to learn how to
deal more effectively with psychosis.
Psychosis is not
Just because a person has an unusual thought from time to time does not mean
that the person is experiencing psychosis. Having unusual thoughts is not psychosis
when these thoughts occur but can be put out of ones mind easily.
Psychosis is
Suppose your unusual thoughts wont go away, and you get confused about what is
or isnt real. You may also start to have other strange experiences, such as hearing or
seeing things that arent there.
You may feel confused and frightened. It may become difficult to do things that you
were able to do just a while ago. A number of distressing changes can happen in
psychosis.
1. Strange and unrealistic thoughts that wont go away even when other people
believe the thoughts cant be true.
7 What Is Psychosis?
Your Turn!
Write down any symptoms or problems you might have that could indicate
Your Turn! psychosis.
Strange or unrealistic
thoughts that wont
go away
Hearing or seeing
things that arent
there
Write Symptoms
or Problems
8 What Is Psychosis?
Your Turn!
Please check any of the boxes that apply to you.
Developing psychosis has nothing at all to do with being mentally weak. You cannot
simply will yourself to not develop psychosis.
Understanding
Research shows that a number of things can influence an onset of psychosis. These
things can be grouped together into six factors: situation, physical state, thoughts,
perceptions, emotions, and actions. These factors interact with each other. For
example, a stressful situation affects your physical state. When your physical state
changes, your thoughts may also change.
9 What Is Psychosis?
Situation
High stress
Hostility and conflict
Understanding
Actions Thoughts
Lack of motivation Distorted thinking
for action Exaggerated self-image
Disconnection from Confusion
other people Paranoia
Emotions Perceptions
Inappropriate feelings Difficulties tuning
Excessive fear out information
Flatness Hallucinations
Physical
State
Disturbed brain systems
Genes
Sleep
Drugs
The risk of developing psychosis increases when a person is faced with a stressful
situation.
This doesnt mean that people only develop psychosis when things are not going
well. Some people develop psychosis when everything seems fine for them.
The psychosis seems to come out of nowhere. However, learning skills to
manage stress can help anybody with psychosis to recover and stay well.
Physical State
Many different types of physical states can increase a persons risk of developing
psychosis.
10 What Is Psychosis?
Genes
Some evidence indicates that certain genes may increase the likelihood of psychosis.
Understanding If one of your relatives has experienced psychosis, then your risk of psychosis is
somewhat increased because you share many of the same genes with your relative.
However, just because a person has a family history of psychosis does not mean
that the person will automatically develop psychosis. Other factors need to be
present for psychosis to develop.
Brain
The brain is very important in psychosis. It appears that changes to certain brain
systems can increase the risk of psychosis. Many drugs cause changes in the brain,
so drug use can also increase your risk of psychosis.
Sleep
Finally, poor sleep is a problem that often occurs in psychosis. A person with
psychosis sometimes cant sleep or sleeps too much. Problems with sleeping
can increase your risk of psychosis and make it harder to recover.
Thoughts
If youre suffering from psychosis, you may also find it difficult to think in a realistic
way about your situation. Your thinking may be distorted.
Any of these kinds of distortions put you out of touch with reality, with the result
that you cant accuratelyunderstand whats going on around you. This, in turn,
makes it harder to deal with the situation appropriately.
11 What Is Psychosis?
Perceptions
People with psychosis often develop problems with how they perceive reality.
The world may seem different.
Understanding
It may be more difficult to tune out things such as street noise or people in a
crowd. A person may become more sensitive to noise or light. Determining what is
and isnt important may become difficult. The experience may feel overwhelming.
People suffering from psychosis may hear, smell, taste, feel, or see things that other
people do not also experience. If this happens to you, then you are experiencing
what is called a hallucination. A common type of hallucination in psychosis is to
hear voices that no one else can hear.
Emotions
If you are suffering from psychosis, you may find that you have emotional responses
that you wouldnt normally haveyour emotions may be distorted.
The type of emotion you experience will be influenced by other factors, such as your
thoughts. Being frightened makes sense when you are thinking that other people
plan to harm you in some waybut in psychosis these thoughts and the related
emotions dont actually fit with the real situation.
12 What Is Psychosis?
Actions
D isco n n ec ting from oth e r peo ple
Understanding It is common in psychosis to disconnect from other people. During psychosis, you
may find it difficult to communicate with others. You may not be sure what other
people are thinking or feeling when you have a discussion with them. You may
feel distant from other people and prefer to be left alone.
Psychosis involves problems understanding what is and isnt real. This lack
of understanding makes it difficult to know what is happening. It may feel
uncomfortable being around other people when you dont know what is going on.
L a c k o f M o t i vat i o n
Another change you might have noticed is that psychosis can make it very
difficult to do simple things that used to be easy.
For example, just getting out of your house, taking a shower, or cleaning your
bedroom may seem difficult. Or, you may not care whether you participate in
interesting activities that you used to enjoy, such as going to the movies or
engaging in your hobbies. Your motivation to do things just seems to be lacking.
Having a lack of motivation does not mean you are lazy. It is a symptom of
psychosis that needs treatment and requires effort to overcome.
Dont be discouraged. Remember that these problems are treatable. The next
section shares some strategies you can use to help control psychosis.
13 What Is Psychosis?
What Can You Do
About Psychosis?
Health professionals will work with you to treat the psychosis. You may have just
one health professional, or you may have a whole team of professionals working
with you. The number of professionals you have working with you doesnt matter.
What does matter is that you are getting good treatment.
When you have all three parts of this treatment formula then your chances of
getting better and staying healthy improve greatly.
Medication
There are many different kinds of medication available to treat psychosis.
These medications are called antipsychotic medication. Its not important
that you know about all of them. It is important that you know what specific
medication(s) you are taking.
MY MEDICATIONS
Write Down
The side effects are different for each different medication. The side effects also
vary from person to person. One person may gain weight from a medication
while another person taking the same medication may not.
Its important that you know the possible side effects for the medications
you are taking.
Your Turn!
Write down information about the side effects of the medication you
Your Turn! are taking.
Its best to complete this activity with the health professional who is
prescribing your medication.
Ask your health professional what are the mild and more common side
effects for each medication. Also, find out if there are any other, more
serious side effects that you should watch out for. Always discuss any
side effects from a medication with your health professional.
You should report any side effects, even if your health professional
has not mentioned them.
There are four common reasons why people stop taking medication:
1. Side effects
2. Feeling better
3. Forgetting
4. Stigma
Other times this may involve changes to your behaviour. For example, if you have a
dry mouth you could drink more water or chew gum. If you gain weight, you could
modify your diet and exercise more.
2. Feeling Better
People might also consider stopping their medication because they feel better.
While its great that you are feeling so much better, you should not stop taking
your medication without consulting your health professional.
3. Forgetting
Sometimes people simply forget to take their medication. Always keeping your
medication in the same place next to something you use every day might help.
For example, keeping your medication right next to your toothbrush, or using a
pillbox divided by the days of the week can be effective reminders.
4. Stigma
Taking the medication is a reminder that you have experienced psychosis.
Many people feel depressed or ashamed that they have had psychosis.
They may stop taking the medication as a way to convince themselves
that everything is normal again. If you want to decrease or go off your
medications, discuss it with your doctor.
Write Down
After youve completed the activity, talk to your health professional, especially about
anything you dont like about your medication(s). He or she may be able to help with
your concerns.
In the following sections you will learn about these important skills:
Understanding
Taking Care of Your Health (page 21)
Managing Stress (page 27)
Solving Problems (page 31)
Setting Goals and Moving Forward (page 41)
Understanding Cognition (page 49)
Connecting With Other People (page 59)
Preventing Relapse (page 65)
Dealing With Symptoms (page 74)
Work on these skills one at a time. You might not complete an entire section in one
session, or even in one day.
Remember that you dont have to learn all these skills on your own. Your Support
Person, whether a health professional, family member or close friend, is there to
help you.
Support
An important part of your treatment is feeling that you are being supported in your
recovery.
Some people with psychosis find that they have become isolated, feel lonely and
dont have enough connections with people. They are unable to get the support
they need. If this has happened to you, then you should check out the section
on Connecting With Other People in this toolkit.
In addition to getting regular physical and dental check-ups there are a number
of other things you can do to take care of your health.
Sleep well
Eat well and exercise regularly
Reduce your use of drugs and alcohol
The following tips do not cover all of the possible information about each
of these topics. Please talk with your health professional if you are having
significant problems in any of these areas.
Sleep Well
Sleeping well every night will help you feel better during the day and make it
easier to deal with stress.
There is a lot of inaccurate and even harmful information about eating and exercise
on the Internet and in many magazines. It is best to get any further information on
these topics from your health professional.
People who use drugs and alcohol usually do so because they experience pleasure
or other positive effects. Some of the positive effects people report from using drugs
and alcohol are:
Feeling high
Feelings of relaxation
Avoiding boredom
Experiencing a thrill
Escaping from negative feelings such as stress or depression
Feeling less shy or awkward around others.
Understanding
Risks to physical and mental health
Arguing with family and other loved ones
Dependency or addiction
Problems concentrating
Problems at work or school
The decision to reduce or quit using drugs and alcohol is yours. Nobody can force
you to quit. It is best if your decision to quit or continue is an informed decision.
Your Turn!
List the positive and negative effects of your own drug or alcohol use.
positive effects N e g at i v e e f f e c t s
Your Turn!
Write Down
Take a look at your list. Do you see any advantages to reducing your drug and
alcohol use?
As you start to reduce your use, you should be prepared to deal with triggers
that may come up.
trigger ways I l l h a n d l e i t
Write Down
After you have successfully quit or reduced your use, you may slip and start to
increase your use again. These types of slips are common. The important thing is
to not give up and go back to using regularly. Review what happened and plan ways
to manage similar situations in the future.
The Challenge Unrealistic Thinking technique (page 78) may be a useful way
to reduce your feelings of stress.
Dont be disappointed if one method doesnt work. That strategy may not be the
best one for that situation. Stick with it for a while, though, to give it a chance.
If it still doesnt work, try another.
With time and effort the chances are good that you will find a way of managing
stress that works well for you.
1. Relaxation
Relaxation can help you calm your body and mind. Some benefits to feeling
relaxed and calm are that you:
Experience less stress
Get more enjoyment from various activities
Think more clearly
Make better decisions
27 Managing Stress
There are lots of different ways to relax. Some examples of calming
activities that you may enjoy include:
Reading a good book
Understanding
Taking a warm bath
Practicing yoga or gentle stretching exercises
Going for a stroll in the park
Relaxation should feel good. If you start to feel uncomfortable, then stop.
Your health professional or Support Person can help you learn these methods of
deep relaxation. There are also CDs of relaxation methods that you can borrow
from the library or purchase at bookstores.
28 Managing Stress
Your Turn!
List three things you can do to relax.
Your Turn!
2. Preparation
You dont have to wait until you feel stress to use stress-management skills. Preparation
Understanding involves anticipating stress and getting ready for it. Knowing you have these skills
will make it easier to deal with stress in the future. In fact, simply preparing for a
stressful situation can lower your perception of how much stress you encounter.
There may be upcoming situations that you know will cause you stress.
Certain times of the year (such as Christmas or a birthday) or certain events
(such as a family get-together or a job interview) create stress for many people.
You may be able to change or even avoid some situations that you know act as
triggers. For example, being alone at a hockey game may be a problem, but being
with someone at a hockey game is fine. You can avoid the trigger by always going
to a game with a friend. On the other hand, if every hockey gamewhether you
go alone or with someone, or whether the stadium is empty or crowdedis a
problem, then you may want to avoid hockey games for a while.
29 Managing Stress
While you cant avoid all the situations that cause stress, you can prepare yourself
for these stressful events so you are able to manage the pressure more effectively.
Strategies such as problem solving can help you deal with any current stress, as
Understanding
well as prepare you for upcoming stressful situations.
Rehearsal is a useful strategy to lower your anxiety about upcoming stressful events.
Examples of possible stressful events might be a job interview or a social situation
where you dont know anybody. Go over the event in your mind, practice what you
will say, and how you will act. You can also try rehearsing situations with your
Support Person. For example, if you have an upcoming job interview you can ask
your Support Person to pretend to be the interviewer. Think about what types of
questions you might be asked during the interview and practice answering them.
Your Turn!
Think of what is happening over the next couple of months. Is there
anything coming up that makes you feel worried or anxious? Write down
anything that comes to mind. Consider using problem-solving techniques
or rehearsal with your Support Person to help you prepare.
Your Turn!
Stressful situation
coming soon...
Things I can do to
prepare for this...
Write Down
30 Managing Stress
Solving Problems
Everyone has problems from time to time.
Facing and solving problems is a part of life.
It is easy to feel stress when you have a problem. This stress can make
psychosis worse.
You cant avoid all problems, but you can reduce stress by using good
problem-solving skills.
Work through these six steps in order. Try not to skip any of the steps.
Dont get frustrated if this seems difficult at first. With patience and practice,
you will get better at solving problems. Ask your Support Person for help if
you get stuck.
On the following page is an example of how to work through the six steps.
Support
Person
31 Solving Problems
Anita dislikes her parents nagging her to wake up early and not just sit around the
house all day. Heres how she used the six steps to solve her problem.
Thinking of and Compare a. It is a good idea to talk to my parents, but I worry that it
Comparing 4 your solutions might result in us arguing again.
Solutions
b. It sometimes takes a few weeks to get to see my doctor, so
this wont help me in the short-term. Changing medications
may only help a little and may take a long time. I can usually
see my clinician more quickly. He may be able to help my
parents and me come up with a solution.
c. If I could sleep as late as I want and still get my work done
without my parents bothering me, then everybody wins.
d. This is a drastic solution that can create a lot more problems.
Put your Find a time when my parents and I can meet with my clinician.
6
solution
into action
32 Solving Problems
Step One: Choose the Problem
You need a specific problem to practise problem solving.
Problem
Solving Think about your problems. What causes you to become stressed or upset?
Paying attention when you feel stressed or upset can help you identify your
problems. For example, what was happening just before you began to feel
stressed or worried? What were you thinking?
Here are some examples of problems people experience. Some of these may be
familiar to you.
33 Solving Problems
Choose a small problem. Working on small problems helps you practice problem
solving. After you have successfully solved a few small problems, you can begin to
tackle the bigger ones.
Support Once you have chosen a problem, spend a few minutes describing your problem
Person to your Support Person. Be as specific as you can.
Anita chose the problem of her parents nagging her to do more and not sleep so
much. For the problem-solving method to work best, Anita needs to clearly define
her problem. Anita thinks her parents nag her because:
They dont understand how tired she is
She goes to bed later and wakes up later than everybody else
They want her to do things that she is not ready to do
Your Turn!
Describe the problem you chose in the space below. Be as specific as you can.
Your Turn!
Describe
34 Solving Problems
Step Two: Understand the Problem
Asking specific questions about your problem will help you
Your Turn!
understand it better and can lead to effective solutions.
Your Turn!
Write your answers to the following questions in the spaces below.
Q u e s t i o n s a b o u t m y pr o b l e m
q
Write Down
Support
Person Have I had this
problem before?
How did I handle
it? Were the results
worth trying again?
Do I need to find
out more about this
problem? Is there
any information
I dont have?
Do I have any
other ideas about
this problem?
35 Solving Problems
Step Three: Come Up With
Different Solutions
Think of Once you understand your problem better, you can start
Solutions
to think of different solutions.
Your Turn!
Write down four ways that you might be able to solve the problem.
For now, dont try to decide which of the four ways is best. Just think of
four different things you could do to help solve this problem. If you have
difficulties, ask your Support Person for some suggestions.
t h i n g s i c o u l d d o t o s o l v e t h e pr o b l e m
1
Your Turn!
Write Down
36 Solving Problems
Step Four: Compare Your Solutions
In this step, you compare the good and bad things about
Compare
Solutions each potential solution.
Anita filled out her worksheet like this:
Po s s i b l e w h at s g o o d w h at s b a d
S olu t i o n about this? about this?
Bring my parents Maybe the doctor can change the dose so It may take a long time
to talk with my Im less tired and have more energy to do to see the doctor and
doctor or clinician the things Im supposed to. The clinician get the dose adjusted.
to see if being tired can explain to my parents that my tiredness Even after all that time
is a problem with is a medical condition and does not mean I may still feel tired.
my medication. that I am lazy. He may also help us come
up with a solution that works for both my
parents and me.
Make a contract I will get to sleep in later. My parents wont It limits my excuses.
with my parents have to nag me to do my work. I still have to do
that I will take care the work.
of my tasks when
I have the most
energy.
37 Solving Problems
Your Turn!
Write down the good and bad things about each of your four solutions.
Discuss what is good and bad about your potential solutions with your
Support Person.
Your Turn!
Po s s i b l e w h at s g o o d w h at s b a d
S olu t i o n about this? about this?
Write Down
38 Solving Problems
Step Five: Pick the Best Solution
Pick the Best Use the following questions to help decide which solution
Solution
is the best.
Your Turn!
Write your answers to the following questions in the spaces below.
Q u e s t i o n s a b o u t m y pr o b l e m
q
39 Solving Problems
Step Six: Put Your Solution
Put Your
Chosen Solution
Into Action
Into Action
Once you choose a solution, its time for action.
Use the Setting Goals and Moving Forward section (on page 41) to create a workable
plan.
Dont be discouraged if your plan doesnt work. Try another possible solution from
your list. Or, you may come up with a new solution to try.
Support
Person
40 Solving Problems
Setting Goals and
Moving Forward
Psychosis can stop people in their tracks.
Many people with psychosis just stop doing things they used to do, such as work,
school, taking care of themselves, seeing friends, and having fun.
Its not that you have lost all your goals. But starting to do these things again may
seem almost impossible. You may feel that it would require just too much effort
and you cant even get motivated to start.
In this section we will look at how you can gradually start to set goals and move
forward. The key is to start slowly and set goals that you can achieve. Dont use
a lack of motivation as an excuse not to start. Start by setting and achieving small
goals. Success with small goals will increase your feelings of confidence and
competence and motivate you to set larger goals.
Four steps you need to take to start setting goals and moving forward:
1. Select your goal
2. Define your goal
3. Move towards your goal
4. Review your goal
You will need to work through each of these four steps in order.
Start with smaller goals that you are likely to achieve. This will help you learn good
goal-setting skills. You can try your skills with larger goals after you achieve success
with a few smaller goals.
Sam has many large goals. He wants to be able to work, play soccer, and have
money to go out to movies with his friends. Sam knows that it will take time
before he can accomplish all these goals. He knows that goal-setting skills will
help him. To start practicing goal setting Sam picks a smaller goal. He decides
to set a goal of getting out of the house more often to alleviate his boredom.
Sam knows that goals are best when they are specific, scheduled, supported,
and realistic. He records his goal in the goal-setting worksheet.
who will
GOAL How often? w h e n e x ac t ly ?
s u pp o r t M e ?
If you have problems coming up with a goal, think about whether there is anything
in your life that you would like to change. Perhaps you would like to socialize
more with other people. Perhaps you would like to get into better physical shape.
The process of thinking how your life could be better will help you identify a
larger goal.
If you have a large goal that is really important to you, then set a smaller goal that
takes you one step towards your larger goal. This smaller goal should be something
you can accomplish within the next week. Lets say you want to lose fifteen pounds.
This is a large goal that will take some time to accomplish. A smaller goal that takes
you one step in this direction would be to go for a 15-minute walk, four days a week.
Your Support Person can help you select a goal, but the goal that you decide on
should be your own. It should be something that you really want.
After thinking about your goals for a while you may find that you have a lot of
different goals. Its great to have lots of goals. Dont try to achieve them all at once,
though. Its best to focus on just one goal for now.
specific
Be as specific as you can when you define your goal. Vague or unclear goals have
less chance of success. A goal such as get more exercise is vague. It doesnt tell you
Understanding
exactly how this goal will be accomplished. A more specific way to express this goal
would be to state go for a 30-minute bike ride at the park on Monday, Wednesday,
and Saturday.
scheduled
Use the following questions to help set a schedule for your goals:
Exactly when will I do this? What days and at what time?
For how long will I do this? 10 minutes, 30 minutes, or one hour each time?
Where will I do this? In my house, at the park, or at the community centre?
supported
Will having support in place help you achieve your goal? Think about who can best
support you and how they will do this. You may choose to have somebody remind
you of your goal. Agree in advance how they will give you this reminder.
Other types of support can involve help with finding out about information,
transportation, or the resources (financial or otherwise) you need to get started.
Determining how difficult your goal should be can be challenging. Check with your
Support Person to see if he or she thinks your goal is set at the right level. Its best to
make your goal easy the first time you do this. You can always make the next goal a
bit more ambitious.
Your Turn!
Define the goal that you have set for yourself in the worksheet below.
who will
GOAL How often? w h e n e x ac t ly ?
s u pp o r t M e ?
Your Turn!
If you miss a scheduled time, for whatever reason, reschedule for another time.
For example, if Sam wasnt able to go to the community centre on Thursday because
it was a holiday, then he could reschedule for Friday, making a note in his calendar.
Using a Calendar
A calendar or day planner is also a good place to track your other
activities and write down reminders. You can list your:
Appointments
Times to see friends
Important dates like library-book-due dates and deadlines
for paying bills
Your calendar provides you with a place to plan your activities for each
coming week. By looking at your coming week you can make sure that
you have a good balance of time for:
Responsibilities
Friends
Recreation
Relaxation
Here are three common reasons why goal setting may not work.
1. Problems encountered along the way
Sometimes unanticipated problems come up that prevent you from working toward
your goal. It might be that there were some new stressors in your life, and your
priority shifted to coping with these. Perhaps you didnt have all the resources
you needed to work on the goal. There could have been a problem with money,
transportation, or another resource. Maybe your original plan was no longer
possible. You may have planned, for example, to go for a swim three times a
week, but then the pool closed for repairs.
Your problem-solving skills can be used to explore solutions for any problems
you encounter along the way to your goal.
2. The goal you set was too difficult
Finding the right level of goal takes time and practice. Its common for people to set
ambitious goals when goal setting and then find out later that these goals were much
too difficult. Revising the difficulty of your goals is part of the goal-setting process
and is to be expected.
3. The goal is no longer attractive
Your goals may simply change over time. Just because something was your goal a
few weeks or months ago doesnt mean that it is today. If your goal no longer seems
important to you, then change your goal. Goal setting is simply a skill to help you
achieve the goals you want to achieve.
R e wa r d yo u r s e l f
Its a good idea to build in some rewards for yourself in your goal
setting. Rewards dont have to be something that cost money.
Rewards can also involve taking time to do something nice for
yourself, such as spending the afternoon at the park with a friend
or going on a picnic with your family at the beach.
These are the skills needed to process information, think, read, understand,
and solve problems. Some of the main types of cognition include: attention,
memory, processing information, solving problems, and planning/organizing.
These cognitive skills overlap with each other and work together as bits of
information enter the brain, are processed, and acted upon.
It takes time to learn and apply the suggestions about how to handle problems
with cognition. It also takes time to see the positive effects of your efforts.
49 Understanding Cognition
Cognition and Psychosis
Understanding Most people with psychosis experience some degree of cognitive problems.
For some, changes in cognitive functioning may be one of the earliest signs
of the illness (occurring even before psychotic symptoms begin). Research has
shown that the parts of the brain responsible for specific cognitive abilities
often do not function the same way for people with psychosis.
Not everyone with psychosis is affected by cognitive difficulties in the same way.
Some experience more problems with a certain aspect of cognition, such as attention
or memory. Cognitive problems may come and go for some people. For example,
cognitive problems may be most noticeable during episodes of illness. For others,
the cognitive problems continue even when other symptoms go away.
H o w c a n I t e l l i f I h av e at t e n t i o n p r o b l e m s ?
People with attention difficulties often have trouble concentrating on a task for
a long period of time. They might also become distracted, especially when other
things are happening around them. Finally, some people may find it hard to
concentrate on several things at once, like when you need to multitask.
Some of the following could indicate problems with attention and concentration:
Cant remember a phone number you just read for long enough to dial
it correctly
Cant repeat the last five digits of a number
50 Understanding Cognition
Cant repeat a four- or five-digit number backwards
Loses track of time
Understanding Cant concentrate enough to read
Is easily distracted
Feels bored
Interrupts others during conversations
Tries to do too many things at once
Seems absent-minded
Gives up easily
Is easily confused
Has trouble learning simple things
W h at c a n I d o?
Here are some strategies that might help with focusing your attention.
Dont put too much demand on your attention span: Keep things simple,
direct, and to the point. Limit the time spent on any given task. For example,
you may only be able to spend ten minutes on a task at a time.
Focus on one thing at a time: Dont try to divide your attention among
different tasks. Focusing on more than one thing can become overwhelming.
Take breaks: It is important to rest and take breaks to prevent yourself from
becoming overwhelmed by challenging tasks.
Limit distractions: Simplify the environment by removing distractors
such as background noises, multiple speakers in a conversation, and/or
disorganized surroundings. Having something to fiddle with, such as a
squishy ball, can help keep restless hands busy while you focus on the task.
Use cues and reminders: Cues such as self-talk, a touch or look from
someone, or a visual reminder can help you focus and bring back your
attention when it goes off-track.
Mix it up: Vary the content or setting of the information or task.
You might try alternating between different tasks to keep yourself
interested and engaged.
51 Understanding Cognition
Number Two: Learning and Memory
Learning and memory are closely connected. Learning is when you pick up new
information or skills. Memory is the process of storing knowledge and skills and
Understanding
recalling them later.
Your Turn!
Here is a checklist that can help you get to know your individual learning
preferences. Check which statements best apply to you. I learn best:
Your Turn!
In the morning By doing By doing it alone
In the evening By reading With other people
In the afternoon around
By mimicking
By listening With routines
By trial and error
By seeing With music/TV on
By learning small
bits at a time In a quiet environment
Please check the following statements that match your learning style. I:
Like to work with Tend to think first Like to stay really
my hands in terms of the big focused on one thing
picture at a time
Tend to be detail
oriented Like a lot of freedom
to explore an idea
52 Understanding Cognition
Use your responses to guide how you attempt to learn something new. For example,
if you prefer to learn by hearing rather than reading, try to find and use books on
tape or instructional DVDs. If you learn best in the afternoon, wait until the
afternoon before you try to learn something new. Try comparing how well you
Understanding learn when you try to use your preferred approaches and how well you learn
when you do not use your preferred approaches.
H o w c a n I t e l l i f I h av e m e m o r y p r o b l e m s ?
People with psychosis may have memory problems. Memory difficulties can occur
for both verbal and visual information. When verbal memory is affected you may
have more difficulty remembering instructions that have been explained to you,
such as directions, or remembering information you have read. When visual
memory is a problem, you might notice that you have trouble remembering
things you have seen.
Your Turn!
Some of the following could indicate problems with memory.
Please check the ones that apply to you. I:
Forget to take medications at Ask the same question again
Your Turn!
prescribed times and again
Have trouble keeping scheduled Get lost while travelling
appointments (e.g., forgetting directions)
Dont follow through with plans Have trouble remembering what
or activities I have read
Have trouble remembering strategies Forget names
that would help with remembering Take longer to learn things than
(e.g., forgetting to set the alarm, before
bring a watch, or carry a bus schedule)
Cant recall what happened at
Misplace things meetings with other people
Lose track of money Cant recall what was discussed
Forget important dates at a meeting
(e.g., birthdays) Dont remember the characters
Ask people to repeat things in a show
frequently
53 Understanding Cognition
W h at c a n I d o?
Here are some strategies that often help decrease problems with memory.
Understanding
Avoid distractions: When trying to remember something, it is important
that you pay attention to the source of the information. Strategies such as
making sure you are in a quiet environment, focusing on one thing at a
time, and minimizing the number of people in a conversation can help.
Make use of repetition: It can help to have important information or
instructions repeated. For example, during conversations you may ask
people to repeat themselves or you could try saying what you heard out
loud using your own words to make sure you understood it. When reading,
you may need to re-read important parts several times. Developing habits/
routines can also help you remember. For example, keeping your keys in
the same location at home lessens the chances of misplacing them.
Use memory aids: It can be helpful to have a way of recording important
information so you can refer back to it. This will help you if you forget it.
When possible, write down important information. For example, keeping
a diary of important ideas, a day planner for appointments/contact
information, or lists of things to do or buy are common memory aids
used by many people.
Electronic devices (e.g., cell phones) are great memory aids since
they have calendars, take voice memos, and can even remind you
about events.
Cue your memory: There are a number of ways you can cue your memory
to help you remember something.
Mnemonics are groups of words or letters that help you remember
more detailed information. For example, students use the first letters
of the mnemonic Never Eat Shredded Wheat to remember the
order of directions on a compass: North, East, West, and South.
Alarms can also be helpful in cueing ones memory, for example,
to take medication at a certain time.
Strategically placed sticky notes with reminders (turn off the stove)
can also be helpful.
54 Understanding Cognition
Try multiple ways of remembering: For some people, simply listening to
information isnt enough to learn something new. Instead, it may be easier
if important information is also presented visually. Similarly, when trying
to remember something visual (e.g., where you parked the car), it may help
to make an effort to think about the location using words as well: The car
Understanding is parked on the 3rd floor to the right of the mall entrance.
H o w c a n I t e l l i f I h av e p r o b l e m s
with cr itic al think ing sk ill s?
People who have trouble with critical-thinking skills often have trouble with
goal-directed behaviour. For instance, they have trouble getting themselves going
to begin tasks, coming up with plans, or dealing with problems that arise.
Your Turn!
Some of the following could indicate problems with critical thinking.
Please check the ones that apply to you. I:
Your Turn!
Respond impulsively Have trouble making decisions
(even simple ones)
Have trouble understanding
the consequences of actions Dont plan ahead
Repeat the same mistakes Am disorganized
over and over Have trouble finishing things
Have trouble getting things started that have been started
Have trouble with changes in routine Have trouble recognizing when
my actions may be dangerous
Have difficulty dealing with
surprises or unexpected events Have trouble recognizing mistakes
wh at c a n i d o?
Here are some strategies that often help with critical-thinking skills.
Come up with routines: Having routines (e.g., schedules, doing things
the same way over and over) can help with organization and planning.
For example, certain tasks such as doing the laundry could be scheduled
55
for the same day and time each week.
Understanding Cognition
Plan your day: Use a planning tool such as a day planner to help you
organize your time. (Your mobile phone probably has a great calendar
built into it.) Because it can be hard to remember to use a planner
Understanding in the first place, you may want to come up with a daily routine
(e.g., use the day planner every morning with your first coffee of
the day) or use a memory cue (e.g., an alarm) to remind you.
Break down tasks: Complex tasks with many steps can be overwhelming
for people who struggle with critical-thinking skills. It can help to talk to
a family member, friend, or health professional about ways to break down
a large task into smaller components that are easier to tackle.
Make lists: Try keeping ongoing lists (e.g., of supplies such as groceries) and
bringing these lists along whenever you go shopping or do other errands.
Set priorities: One way to set priorities is to re-write lists with the most
important items at the top, or to group items in some way. For example,
you might group all errands that need to be done on the same day,
or group those that are in the same geographical area.
Try playing games: Engaging your mind in solving puzzles or playing
games can help to train your critical-thinking skills. There are many
popular games that encourage players to plan ahead, develop strategies,
and adapt to changing circumstances (e.g., chess, Sudoku puzzles, and
card games such as Solitaire).
H o w c a n i t e l l i f i h av e p r o b l e m s w i t h s o c i a l c o g n i t i o n ?
People who have trouble with social cognition often end up feeling confused in
social situations. Unfortunately, when someone has trouble reading other people,
that person may also end up feeling rejected or angry. This can lead to withdrawal
and hostility toward others.
56 Understanding Cognition
Your Turn!
Some of the following could indicate problems with social cognition.
Your Turn! Please check any that apply. I:
Have trouble reading social cues (e.g., facial expressions, gestures, tone of voice)
Misinterpret what people say
Am easily manipulated by others
Have difficulty telling the difference between playful and mean-spirited teasing
Have difficulty guessing what other people may be thinking
Have trouble figuring out jokes, or when people are joking
Jump to conclusions about a social interaction
Have difficulty figuring out what other people will do or how they might react
Have trouble explaining things in a way that other people can understand
wh at c a n i d o?
Here are some strategies that often help with social-cognition skills.
Understanding
Get clarification in the moment: Ask the person you are speaking with
what he/she meant (What do you mean by that?). Or use your own words
to restate what you believe the other person has said so that he/she can
correct you if needed (So what you are saying is ).
Ask others for their opinions: Ask a friend or someone you trust to give
you a second opinion about a confusing situation. People you trust might
also be helpful in suggesting ways to deal with situations in which a
misunderstanding has occurred.
Keep track of problem situations: Keep track of the kinds of social
situations in which you experience problems or misunderstandings.
You may be able to find out if you are consistently misinterpreting certain
types of situations or behaviours. Again, others may be able to help you
plan ways to deal with these types of situations before they occur again.
57 Understanding Cognition
Give the other person the benefit of the doubt: Most people are not
intentionally mean, even if they do end up hurting our feelings from time
to time. Try not to overreact to situations that you experience for the first
Understanding time. If a social problem occurs over and over, then you can try some of
the problem-solving techniques to see what is contributing to the problem
and come up with ways to handle it in an open and respectful manner.
General Tips
Several of the strategies discussed in this section are ones that are used by many
peoplenot only people with psychosis. You may even find that you are already
using some of these strategies but have not realized how important they are for you.
You will probably find that the more you practice these strategies, the easier and
more helpful they will become.
Here are some general tips for making use of cognitive strategies.
Take time to think about and identify your problem areas.
Try to make use of your areas of strength. Many of the checklists in this
section can also point out things that are easier for you. Try to build on
these strengths when you come up with plans to tackle problem areas.
Dont try to work on too many cognitive problems at one time.
Start by focusing on one or two areas that cause the most difficulty
in your day-to-day life.
Dont be afraid to tell others about the cognitive difficulties that you are
struggling with. Unfortunately, individuals with cognitive problems can be
mistakenly judged as being lazy or unmotivated when, in fact, it is their
cognitive weaknesses that make it difficult for them to perform tasks
effectively. Other people are more likely to try to help if they understand
what is going on.
Remember that your general health and emotional well-being can also
impact your cognitive abilities. Most people think best (e.g., pay attention,
remember things better) when they are rested and not emotionally stressed.
58 Understanding Cognition
Connecting With
Other People
Psychosis may cause you to disconnect
from other people.
Psychosis can make you feel uncomfortable around others. You may find yourself
spending more and more time alone. This section will help you think about how to
re-establish your connections with others.
Having good relationships with other people is important to your recovery from
psychosis. Other people can help support you when you feel stressed or are dealing
with symptoms. You will also feel good knowing that you can help others by being
there for them when they need you. When things are going well, other people are
fun to be with.
1. Social Circle
Your social circle consists of the people around you who can support you.
Everybodys social circle is different.
Consider whether your social circle is right for you. Its okay to have only a few
people in your social circle, as long as you feel you are getting the support you need.
Having a few people who are very supportive is better than having a lot of people
who arent that supportive! Also, consider whether there is a good balance in the
types of supportive people you have around you. For example, there may be lots of
health professionals and family in your life. Would you like other types of friends,
as well?
Think of
Supportive
Friends
myself
Write Down
1 1
2 2
Write Down
Talk to your Support Person about how to improve those last two social skills.
You may want to work on some social skills with your Support Person a few times
first. You can then find opportunities to practice social skills with other people.
Lots of people are okay with the fact that you are different in this way.
Unfortunately, there are some people who find it difficult to relate to
folks who are different from them in any way. Think about where you can
find people who accept you as you are. You will find many people out there.
Consider whether any of these methods for connecting with other people
will work for you.
Get back in touch with old friends or family members you havent seen
for a while.
Ask any current friends if they want to do something with some of the
other people they know (such as go to a movie together as a group).
Join a support group for people who have similar mental-health challenges.
Join a club or group that matches your interests. The group could focus on
sports, art, music, cooking, or whatever it is that you like to do.
t w o o pp o r t u n i t i e s I h av e f o r co n n e c t i n g w i t h p e o p l e
We presented the formula for good treatment earlier in this toolkit. Here it is again:
You can reduce your risk of relapse by taking antipsychotic medication, using the
skills in this toolkit, and having helpful support.
Even if you are getting good treatment and doing everything right, there is still a
risk that psychosis may come back.
65 Preventing Relapse
Using a Relapse Prevention
Plan Worksheet
Understanding Heres an example of a completed relapse prevention plan. Use this step-by-step plan
to create your own relapse prevention plan.
Name:
Sam Packard
My e a r ly- w a r n i n g s i g n s a r e :
1. Sleeping only 5 hours a night for 3 nights in a row
2. Not wanting to see my friends for 3 days in a row
3. Not showering or washing up for 3 days in a row
NOTE: Any other unusual changes should also be noted.
W h e n I h av e a n y o f t h e s e e a r ly- w a r n i n g s i g n s ,
I will do the following:
1. Inform my case manager (555-4441) and my mother (555-9822) immediately
2. Increase my dose of antipsychotic medication by 0.5mg as pre-arranged by
my psychiatrist
3. Arrange a problem-solving session with my case manager and/or mother
as soon as possible
4. Use relaxation methods to keep myself as calm as possible
Ph o n e n u m b e r s o f m y Ph o n e n u m b e r s o f m y
h e a lt h p r o f e ss i o n a l ( s ) : support person(s):
Daniel Wong (case manager) 555-4441 Julia Packard (mother) 555-9822
Dr. Pamela Sun (psychiatrist) 555-9980 Gordon Singh (neighbour) 555-8156
In c a s e o f a n e m e r g e n c y, I w i l l d o t h e f o l l o w i n g :
Contact my case manager (555-4441) and my mother (555-9822) immediately
If unable to reach my case manager or mother, then I will go to the hospital
emergency room
66 Preventing Relapse
1. Controlling Triggers
Understanding For Psychosis
Many different factors contribute to psychosis. Some of these factors, such as your
genes, cant be changed. Other factors can be changed. These are triggers for
psychosis. For example, a stressful situation can trigger a psychotic experience.
However, you can deactivate this trigger by using problem-solving and stress-
management skills. Recreational drug use can trigger psychosis, but you can
deactivate this trigger by limiting the use of drugs.
Look back at the last time you experienced psychosis. What was happening at
the time? Did you experience life changes? Was something making you stressed?
Had your lifestyle changed?
67 Preventing Relapse
Your Turn!
Are any triggers currently increasing your risk of psychosis? Are you
Your Turn! experiencing or anticipating any stressful situations? Might your drug use
or sleep habits increase your risk?
In the space below write down anything that might be one of your triggers.
You can use the skills in this toolkit to start to control them. Note: Please realize
that following through on a plan to control triggers may be hard to accomplish
during a bad flare-up of psychosis.
my triggers m y p l a n to co n t r o l
f o r P s yc h o s i s these triggers
Write Down
68 Preventing Relapse
2. Recognizing the Early-warning
Understanding Signs of Psychosis
Many people experience changes in behaviour, thoughts, or feelings before any
more obvious symptoms of psychosis appear. These are often called early-warning
signs, signals that something is not right. These are the experiences that may have
occurred before you started to hear voices or became preoccupied with unrealistic
thoughts.
Think back to the time before you developed psychosis, when you first noticed
that you werent doing as well as usual. What were the first changes you noticed?
Knowing what early-warning signs you had before developing psychosis will help
you recognize what to look for. The same changes may signal a future relapse.
69 Preventing Relapse
Early-warning signs may be a normal response to stress. You might start to
experience these changes in a stressful situation. Responding to early-warning
signs and lowering your stress both help reduce the risk of a relapse.
Examining early-warning signs is most helpful when you can be specific about
Understanding them. Stating that you had problems sleeping before psychosis is not specific. It is
better to state that you slept only five hours a night for one solid week. Ask your
Support Person to help you write your early-warning signs so that they are specific.
You want to catch these signs as early as possible. Stay on the cautious side at
first and accept that you may have some false alarms. You can change your list
of early-warning signs when you have more experience.
Your Turn!
What were your early-warning signs before you experienced symptoms of
psychosis? If you have experienced psychosis more than once, is there a pattern
to the type of early-warning signs that you have experienced?
Ask other people who were around you if they noticed any early-warning signs.
Try to write down any early-warning signs in a way that allows other people to
Your Turn!
observe them (for example, crying every day for three days in a row instead of
feeling sad for three days). Be specific in writing down your early-warning signs.
Try to think of the earliest warning signs that you experienced.
Write down the three most obvious early-warning signs you have
experienced.
M y e a r ly- wa r n i n g s i g n s f o r p s yc h o s i s
Write Down 3
70 Preventing Relapse
3. Preventing Psychosis
Understanding from Coming Back
Use your list of early-warning signs to watch for any of these changes in the
future. Early-warning signs indicate that psychosis might be coming back.
Its good to be alert to any other unusual changes. Early-warning signs might
change over time. Check with your health professionals and Support Person if
you notice any unusual changes.
You need a plan for when you experience early-warning signs. The purpose of
this plan is to help prevent the psychosis from coming back. This is your Relapse
Prevention Plan. With a good relapse prevention plan you can take specific steps
to prevent a relapse from happening.
71 Preventing Relapse
Your Turn!
Work with your Support Person and health professionals to come up
with your own plan. Talk with the health professional who is prescribing your
Your Turn!
medication to see if any pre-arranged medication strategies are right for you.
You should also come up with an emergency plan in case things suddenly get
really bad. You can use this plan if you have thoughts of suicide, or if you cant
cope with your symptoms.
When I have any of these early-warning signs, I will do the following:
72 Preventing Relapse
Using Your Relapse Prevention Plan
After you have filled in this relapse prevention plan, you should print it and keep it
someplace handy, such as your wallet.
Understanding
Its important that your health professionals, Support Person, and family or very
close friends also have a copy. You will be more likely to catch early-warnings signs
if you have a number of people watching for them.
73 Preventing Relapse
Dealing With
Symptoms
The main symptoms of psychosis involve problems with knowing what is real.
These symptoms include:
Hearing or seeing things that arent there
Unusual thoughts that wont go away
Medication should provide better control over these symptoms. However,
medication doesnt always make the symptoms go away completely. Many people
with psychosis continue to have these types of symptoms, even though they are
taking medication. While the medication helps a lot, it may not be enough.
Here are three additional strategies to help you deal with symptoms.
Distract yourself
Perform a reality check
Challenge unrealistic thinking
There is no special order for these three strategies. Pick and choose which strategy
you would like to start with.
Dont be disappointed if one strategy doesnt work. It might not be the right one
for you. Stick with it for a while to give it a chance, then try another strategy.
Also, remember that decreasing stress is an important strategy (see the Managing
Stress section on page 27).
With some time and effort the odds are good that you will develop an effective
way to deal with your symptoms.
One way to practice distracting yourself is to try and get an obnoxious tune
out of your head. Sometimes you will hear or remember a popular song or
advertising jingle that you cant stop singing or humming. Rather than be
frustrated by the experience, use it to try a practice round of distracting
yourself. Hum or sing a more enjoyable song. Most people find that the
better song successfully distracts them from the annoying one.
Note: Distracting yourself might not make the symptom go away completely.
It might only reduce how much it bothers you. Consider the reduction
a step in the right direction.
You can also try a distracting strategy if you have problems with hearing or seeing
things that arent there (hallucinations) or if you have thoughts that distress you.
When the symptoms start up, do something to distract yourself from them.
You can also combine two or more distractions. You could listen to music at the
same time that you engage in a hobby. You could wear headphones and listen to
music while going for a walk.
Other people who hear voices report that sometimes quietly humming
to themselves is helpful, too.
Your Turn!
Use this worksheet to keep track of your findings. After each attempt
Your Turn! to distract yourself fill in the worksheet to record how well you did.
Try different ways of distracting yourself and write them down in the
worksheet. Look over your findings to see if certain methods help more
than others. You can use these new skills to reduce future symptoms.
Psychosis can get in the way of your grasp on reality. You can quickly become
confused and fearful. In this sense, psychosis can be similar to having a bad
drug experience.
Performing a reality check can be a useful strategy to help you regain your grasp
on what is real.
Tell your Support Person what you have just experienced or thought. Your Support
Person will help you determine whether or not this was real. Remember, you chose
this person to support you because you felt you could trust him or her. If that person
says your experience is not well connected to reality, trust your Support Persons
opinion.
Even with your best efforts at performing a reality check as soon as possible,
sometimes things get worse, and you find yourself afraid and unsure.
Contact your Support Person. This person can help you through the bad
experience you are having.
Challenging your own thoughts can be difficult, even when you are healthy.
It is crucial to have your Support Person help you. You may have a thought that
isnt realistic and not know it. Your Support Person is there to help you look at
things in different ways.
The goal of this strategy is to replace unrealistic thinking with realistic thinking.
Realistic thinking is consistent with reality and gets you back on track with whats
really happening.
seco n d: Write down the thoughts you are having at the time. Dont censor these
thoughts. Write down whatever is distressing or preoccupying you.
th i r d: Write down more realistic thoughts, thoughts that fit better with what
is really happening.
S i t u at i o n : Ray and Joey were talking on the phone and I heard them
laughing. Ray and I then watched a DVD together, but I
couldnt focus on the movie. I went home.
They were laughing about I have known these two guys for five years. They have never
me. They are planning to do done anything bad to me. It would be completely out of
something bad to me and character for them to do something bad to somebody else
they were laughing about it. they are both very nice guys.
Theyre not really my friends
after all. I better not go out Joeys always cracking jokes. He probably just said something
with them tomorrow. funny to Ray. I have no proof that they were laughing at me.
I could have asked Ray right away what they were laughing at.
I still could.
If I dont go out with them tomorrow, Ill just feel lonely and
bored. Ill go out with them tomorrow and have a good time.
Its not easy to challenge your own thinking, especially when your thoughts can
lead to negative emotions such as sadness, anger, or fear.
thought questions
My thought:
Can I get any more evidence? For example, perhaps I can talk to somebody else who was there at the
time and see how he or she viewed the situation.
If this thought is true, then what else must be true in order to support it?
Where does thinking like this get me? Does it help me at all, or does it just make things worse?
Would other people agree with my thoughts? What does my Support Person think?
If other people wouldnt agree, what might they say is a more accurate way of thinking?
Ask similar questions to evaluate what the voice is saying. For example:
Note down what the voice is saying:
What evidence is there to support what the voice is saying?
What evidence is there that contradicts what the voice is saying?
Would other people agree with what the voice is saying?
What does my Support Person think?
Thinking about the voices in a more realistic way helps take away their
power over you. They wont be as able to affect how you feel about things.
Be patient and have your Support Person help you. Challenging ones
thoughts is always difficult, but it does get easier with practice. You may
find that realistic thoughts will even happen automatically when you start
having unrealistic thoughts. Youll end up talking back to any unrealistic
thoughts. This is a great thing! Be patient. Remember, you have to work at it.
S i t u at i o n :
My thought:
Write Down
Can I get any more evidence? For example, perhaps I can talk to somebody else who was there at the
time and see how he or she viewed the situation.
If this thought is true, then what else must be true in order to support it?
Where does thinking like this get me? Does it help me at all, or does it just make things worse?
Would other people agree with my thoughts? What does my Support Person think?
If other people wouldnt agree, what might they say is a more accurate way of thinking?
Keep working at it. Your skills will get better and better.
b e pr o u d o f yo u r e ffo r t s a n d ach i e v e m e n t s .
84 Congratulations!
For the Support
Person
Welcome to this self-care guide and thank you for agreeing to act as a Support
Person. Your involvement is an important part of the support for the person in
recovery.
Feel free to read this entire manual if you like. Please know, though, that you do not
have to read the entire manual to be an effective Support Person. Two important
sections that you should read are About this Toolkit (page 3) and Monitoring
Your Progress (page 5) which are at the beginning of the document. You can read
individual sections in any order you choose. Also, the person in recovery can work
on the sections in any order. The sections are ordered in a way that introduces some
exercises early on to build skills that will be useful in the later sections. So, although
it is not necessary, it may be a bit better to work on the earlier sections first.
It is okay to share this Support Person section with the person in recovery.
There are no secrets in this, or any, of the sections.
In general, you can help the person in recovery fill out any of the worksheets,
and you can help make information more understandable to the person in
recovery by putting things in your own words.
Recovering from psychosis can be viewed as the effective mix of three things.
The prescribed medications increase someones capacity to think and function better.
Getting the opportunity to do things that lead to a better life can be restricted in
people with psychosis. This self-care guide and your involvement can help the
person in recovery gain some of the skills that increase the chances of finding
better opportunities.
Remember, the guide is primarily for the person in recovery. Your role is
to be supportive.
What is Psychosis?
This section provides background information on psychosis. It outlines common
symptoms of psychosis and examines six different factors that may contribute to
the onset of psychosis. You will probably want to read this and talk it over with
the person in recovery.
Managing Stress
Stress is a part of every persons life. Learning to deal with and manage stress are
important skills. In addition to helping the person in recovery develop techniques
for relaxation, you can gently let the person in recovery know when he or she may
be reacting to stressful situations and mention previous effective methods that were
used to reduce or cope with stress.
Understanding Cognition
This section contains information on cognition and shows how psychosis can affect
cognitive abilities. It then introduces practical suggestions for identifying which
areas of cognition might be stronger and weaker. Most importantly, it presents
some useful ways that a person in recovery can better deal with difficulties
concerning memory, attention, and other cognitive processes.
Preventing Relapse
The activities in this section include identifying and controlling triggers for
psychosis, recognizing early-warning signs of a relapse, and then developing
a full relapse prevention plan.
The Support Persons role is to assist and follow the lead of the person in
recovery, not dictate to the person in recovery what to do. Part of the recovery
process involves gradually assuming more responsibility for ones own choices.
Making independent choices includes how the person in recovery engages with
this self-care guide.
As the Support Person, you can really help with this kind of scheduling and record-
keeping. The person in recovery may fill out worksheets completely alone, and may
ask you for some support in keeping them organized and in one place.
The person in recovery may find it useful to have a photocopy or written record that
reminds him or her of key elements of an exercise. The person in recovery could
then refer to the copy when appropriate. The guide is meant to be flexible. There are
no strict rules about how the two of you should work on any particular section.
Avoid encouraging the person in recovery to attempt too many things at once.
Learning is usually more effective when the person in recovery focuses on one
thing for a while and then comes back to it again after a break. A break can last
for a few minutes, a few days, or even several weeks. Some sections, such as
the Understanding Cognition section, involve quite a few different techniques.
Allow plenty of time to practice these techniques over long periods of time.
Its a good idea for the person in recovery to write down the dates the worksheets are
filled out and keep the completed worksheets in a binder or folder. These completed
worksheets can be a valuable resource
Allow ample time to fill out the worksheets. The steps dont all have to be
completed in one session. Check to see if the person in recovery needs a break
or wants to continue on another day. With some worksheets it is especially
helpful to take enough time (hours to days) to think things through.
Some people are uncomfortable with the word psychosis. Thats fine. The other
sections of this guide will still be useful. You dont need to convince the person
in recovery of the presence of psychosis. Your job as the Support Person is not
to argue about terms such as psychosis.
The best way to help the person in recovery answer the questions in the worksheets
in this section is to be supportive and non-judgmental. The first two sets of questions
are open-ended.
Strange or unrealistic thoughts that wont go away
Images or sounds that arent there
All of these questions do not have to be answered in one session. The list can be
adjusted by adding (and even deleting) items as they occur (or cease to occur).
The third set of questions, the questions that involve checking boxes that match
changes in state of mind on page 9, are not limited to the six questions on the
list. Please feel free to add and check more changes if you feel the additions are
appropriate.
Support It may be helpful to first listen to the description of her or his thoughts prior to an
Person onset and then help show how these thoughts fit with the six factors.
Aspects to consider for the third worksheet, How Taking Medication Has Helped
Me, are changes in mental and physical states (both good and bad) and how the
medication makes the person in recovery feel about her or himself.
Additionally, your support will be helpful with encouraging the person in recovery
to continue taking any prescribed medications. You may be able to suggest a specific
strategy that reminds and encourages the person in recovery to take the medications
on a regular schedule.
Sleep: Getting enough sleep helps reduce stress and contributes to general
well-being.
Eating and Exercise: Weight gain is a common problem for people with psychosis.
You can use the techniques in the Setting Goals and Moving Forward section on page
41 to assist in improving the diet and exercise regimen of the person in recovery.
Remember that small changes are usually easier to accomplish and maintain than
large ones.
Support
Person
Managing Stress (Page 27)
As a Support Person the four points about stress to keep in mind are:
1. Too much stress can make anybodys mental health suffer. It is well known
that stress can make psychosis worse.
2. You can help the person in recovery learn to reduce stress using the methods
described in this section.
3. You can let the person in recovery know when she or he is showing signs
of stress.
4. You can also prompt the person in recovery to employ the stress-reducing
and relaxation techniques covered in this section.
There are many ways to manage stress. The two methods described in this section
are relaxation and preparation.
r e l a x at i o n
Please feel free to share any relaxation techniques you have found. You may
also want to investigate some relaxation books, CDs, or programs with the
person in recovery.
p r e pa r at i o n
An effective way to help the person in recovery with the preparation method is to
role play different situations so she or he can practice rehearsing. You can discuss
what topics and situations may arise before the role play, and then practice them
with the person in recovery.
Rehearsal works in two ways. First, through rehearsal the person in recovery begins
to see the imagined stressful event as less of a challenge. This has the positive effect
of decreasing the perception of threat associated with that event. Second, rehearsal
increases the perception of competence, so the person in recovery feels more able to
face the challenge posed by the stressful event.
Also, keep in mind that sometimes stress is the result of taking on too much.
The best solution may be to help the person in recovery evaluate the overall situation
and lower the number of commitments. Any potential reduction in commitments
should not add stress in the long term, nor negatively affect the persons self-esteem.
S t e p O n e : Ch o o s e t h e p r o b l e m
Help the person in recovery be more specific about the problem.
Be honest and straightforward with your assessment.
Encourage the person in recovery to start with a small problem.
Once you are both comfortable with the problem-solving method,
you can try working on bigger problems.
S t e p Tw o : U n d e r s ta n d t h e p r o b l e m
Understanding the problem more clearly can lead to better solutions.
If the example in the guide doesnt seem clear, provide another example.
Make one up or use an example familiar to the person in recovery.
Help the person in recovery understand the problem better by talking
about it. Use the questions on the worksheet or others you think of.
For example, ask about factors associated with the problem.
S t e p F o u r : C o m pa r e y o u r s o l u t i o n s
Look at each of the proposed solutions with the person in recovery.
Are these ideas realistic? Your perspective will be useful.
If the example in the guide doesnt seem clear, provide another example.
Make one up or use an example familiar to the person in recovery.
S t e p S i x : P u t yo u r s o l u t i o n i n t o a c t i o n
Help the person in recovery carry out the steps needed to implement
the solution.
Use the goal-setting method for strategies on how to carry out the solution.
Arrange a time to check on the progress and revise the solution, if needed.
Be encouraging. Acknowledge and congratulate the person in recoverys
96
efforts.
S t e p Tw o : D e f i n e y o u r g o a l
You can be particularly useful by suggesting smaller or time-limited goals
that can be measured easily.
Goals that are stated in the form of specific items that can be crossed off
or checked on a daily basis are easier to work with than more general,
vague goals.
S t e p Th r e e : M o v e t o w a r ds yo u r g o a l
A great sense of accomplishment and increased motivation come from
tracking positive steps towards a goal.
While you may want to help the person in recovery set up a workable system,
the best results usually come when the person records the tracking results.
S t e p Fo u r: R e v i e w yo u r g oa l
Goals should frequently be re-evaluated and reviewed.
You can also aid the person in recovery in updating her or his goals.
New goals can be added as old goals are achieved.
Unachieved goals can be modified or set aside.
Support
Attention
Person Memory
Processing information
Solving problems
Planning and organizing
Recognizing and understanding emotions in oneself and other people
People with psychosis frequently experience problems with cognition.
The ways that psychosis affects people vary widely from person to person.
Support 5. Social cognition: As a Support Person you can help the person in recovery
Person interpret social situations. These could be situations between the two of you,
situations in which you were present along with others, or situations in which
you were not present.
social circle
You will probably want to use a blank sheet of paperor several sheetswhen
assisting the person in recovery in filling in the names of the various people in
her or his social circle. You can also fill this information out by labelling me
(referring to the person in recovery) across the top of a blank sheet of paper
and dividing the page into four columns for the four categories: family, friends,
health professionals, and other people.
Your perspective may help the person in recovery fill in members of her or his
social circle that may otherwise be overlooked.
After the person in recovery has compiled this list you can invite him or her
to look at it more closely. Which ones are the good relationships to develop?
Along with possibly adding relationships worth developing to the list, should
some people be taken off? Your viewpoint may be useful in helping the person
in recovery determine which types of friends have the most positive effects.
social skills
Some people may be too shy to think of social skills at which they are good.
If this is the case, you can point out some of these skills. This is also a nice
opportunity to praise the person in recovery and build up some self-esteem.
Higher-level relapse prevention involves creating a plan for when things are getting
worse. A higher-level prevention plan sets out exactly whom to contact and what
else should be done before there is a full-blown relapse.
Fortunately, psychotic episodes dont come unannounced and out of the blue.
There tends to be a sequence the person goes through. The goal is to recognize
the persons sequence and break the pattern of relapse early. The sequence may
progress to early-warning signs. Being aware of the persons early-warning signs
will allow everyone to help prevent further deterioration. If the trend towards
psychosis continues, you need to seek professional help.
The relapse prevention plan should be developed with input from the person in
recoverys health professionals. Discuss with the person in recovery who are the
appropriate people who should have a copy of the relapse prevention plan.
4. Index
The following pages include references to the Support Person. You may want to read
these pages when assisting the person in recovery.
Index
Pag e # comments
Pag e # comments
Support 30 You can also try rehearsing situations with your Support
Person Person. For example, if you have an upcoming job interview
you can ask your Support Person to pretend to
be the interviewer.
43 Your Support Person can help you select a goal, but the goal
that you decide on should be your own.
62 You may want to work on some social skills with your Support
Person a few times first.
Pag e # comments
Support 72 Phone numbers of my Support Person(s):
Person
73 Its important that your health professionals, Support Person,
and family or very close friends also have a copy.
80 Dont forget to have your Support Person help you with this.
B r i t i sh C o l u m b i a S c h i z o p h r e n i a S o c i e t y
Support and information for families and friends of people with schizophrenia
http://www.bcss.org/
h e a lt h l i n k b c
Locate Early Psychosis Intervention programs and other mental health programs across the
province. Also includes information on numerous health and mental health conditions.
http://www.healthlinkbc.ca/
Psy c h o s i s S u c k s
Website for the Fraser Health Early Psychosis Intervention Program. Handouts and
information on early psychosis including a Family Coping Booklet.
http://www.psychosissucks.ca/
H e l p O v e r c o m e Psy c h o s i s E a r ly
Website for the Vancouver/Richmond Early Psychosis Intervention Program.
http://hopevancouver.com/
BC M i n i s t r y o f H e a lt h S e r v i c e s
Includes publications such as the Early Psychosis Care Guide, EPI Standards and Guidelines,
and the Family Physician Guide.
http://www.health.gov.bc.ca/library/publications/
mindcheck
A BC website designed to assist teenagers and young adults in identifying mental health
and substance-use problems early and direct people to the appropriate resources.
http://mindcheck.ca/
Here are some extra copies of the worksheets that you can use for:
Progress Form (Pg. 6)
Medications (Pgs. 15 and 17)
Problem Solving (Pg. 38)
Goal Setting (Pg. 45)
Relapse Prevention Plan (Pg. 72)
Challenging Unrealistic Thinking (Pg. 82)
area r at i n g s t r at e g y r at i n g a f t e r r at i n g a f t e r
to R at e before used 2 weeks 4 weeks
m y m e d i c at i o n s P o s s i b l e s i d e e f f e c t s
Name of m i l d a n d co m m o n s i d e e f f e c t s
m e d i c at i o n (Report next time you see your health professional)
Write Down Po s s i b l e w h at s g o o d w h at s b a d
S olu t i o n about this? about this?
who will
GOAL How often? w h e n e x ac t ly ?
s u pp o r t M e ?
When I have any of these early-warning signs, I will do the following:
S i t u at i o n :
The information contained in this toolkit reflects the knowledge and evidence at the time of
its release. As new research emerges, the toolkit will evolve to ensure that it is based on the
best evidence.
This toolkit is meant to provide individuals with psychosis and their support persons with
accurate information about psychosis. It is not a replacement for professional treatment of
psychosis.
Acknowledgements
The Dealing with Psychosis Toolkit was funded by the British Columbia Ministry of Health
(MoH). Fraser Health was contracted to oversee the development of the project. The Advisory
Committee was co-chaired by the representatives from Fraser Health and MoH.
Project Leaders
Laura Hansen, MSW,
Team Director, Vancouver/Richmond
Early Psychosis Program, Vancouver
Karen Tee, PhD, Coastal Health Authority
Manager, Child, Youth & Young Adult Mental
Health & Substance Use Services, Fraser Health John Higenbottam, PhD,
BC Alliance for Accountable Mental Health
Gerrit van der Leer, MSW, and Addictions Services
Director, Mental Health and Substance Use Branch
Health Authorities Division, BC Ministry of Health
Chris Huston,
Practice Lead Community Integrated Health
Services, Mental Health & Substance Use
Advisory Committee Interior Health
John Braun, MA,
Manager, Case management, Rehabilitation and
Robert Lampard, PhD,
Senior Psychologist Consultant, Child and Youth
Residential Services, Vancouver Island Health Mental Health, Ministry of Children and Family
Authority Development
Jana Davidson, MD,
Medical Director, Child & Adolescent Mental
Ken Moselle, PhD,
Manager, Performance Standards and
Health Programs at BC Childrens Hospital Monitoring Mental Health & Addictions.
VIHA Lead eHealth Access Control Design,
Sandi DeWolf, MA, Vancouver Island Health Authority
Team Leader, Early Psychosis Program,
Northern Health Randy Murray, BSW,
Practice Lead, Mental health and Addictions,
Julie Dhaliwal, BA, CYC (cert), Interior Health
Manager Youth Regional Services and Eating
Disorders, Mental Health and Addictions Joe Power, RN,
Services, Northern Health Manager, Mental Health and Addictions Services,
Victoria, Vancouver Island Health Authority
Dolores Escudero, PhD,
Mental Health and Substance Use Branch, Health Richard Williams, MD,
Authorities Division, BC Ministry of Health Clinical Director, Victoria Early Psychosis
Intervention Program
Monica Flexhaug,
Manager, Mental Health and Substance
Use Branch, Health Authorities Division,
Ministry of Health
July 2012