A Guide To Memory Clinics in Ireland 4th Edition
A Guide To Memory Clinics in Ireland 4th Edition
Memory Clinics
in Ireland
4th edition
Summary ...........................................................................................................................37
References ........................................................................................................................39
Acknowledgements ......................................................................................................40
Authors ..............................................................................................................................40
Since this booklet was first published in 2010 both the interest and concern about
Alzheimer's disease and related dementias has grown from relative obscurity to
their becoming the biggest challenge to global health and social care. Countries
are now being forced to take these conditions seriously and over the last few years
we have witnessed some significant developments. This includes the World Health
Organisation declaring dementia a public health priority in 2012; the G8 group of
leading countries convening a summit in London and setting the ambitious target
of identifying a cure, or a disease-modifying therapy, for dementia by 2025 and at
least 18 of the 28 EU member states having in place some form of dementia
strategy or plan.
In 2014, Ireland developed its own national dementia strategy and as with many
of our European neighbours, the strategy highlights the role that memory clinics
have, both in the diagnosing and the sub-typing of conditions. The strategy also
calls for the 'timely' diagnoses of dementia through the identification of memory
clinics, the clarification of referral pathways, the use of common referral templates
and appropriate triage of referrals. This booklet was first developed to provide
much needed information about memory clinic services around the country to
health service professionals, family members and individuals concerned about
their memory or cognition. Its purpose remains much the same today. New services
have developed and some, sadly, have been forced to close. Most, if not all, of
Ireland's public memory clinic services have been developed within existing
resources and are therefore reliant on the hard work and commitment of their staff.
4
What is a Memory Clinic?
Memory clinics were first described in the US in the 1980's and the first clinic
opened in Ireland in 1991. Their purpose is the "identification, investigation and
treatment of memory disorders including dementia" (Jolley et al, 2006).
In Ireland, there is a lack of uniformity in the services that they provide and the
specialisms of the health professionals involved and so memory clinics can vary
widely in both their composition and the type of services provided. All would strive
to make timely diagnoses and provide treatment where appropriate and they
would also aim to identify and treat health problems other than dementia that
may be causing the client difficulties. Memory clinics also play an important role
in reassuring those who are worried about their memory when there are no
problems to be found.
The timely diagnosis of a dementia allows not only for appropriate treatments to
commence, but also provides an opportunity to offer important information and
advice on a range of issues such as financial and legal affairs, to accessing support
services. It also enables the person experiencing symptoms to be more proactive
in lifestyle decision-making and planning his or her own future care. Memory clinics
may also provide post-diagnostic counselling and emotional support for people
newly diagnosed. Some clinics offer the opportunity to become involved in
research such as drug trials and lifestyle intervention studies.
5
How to access Memory Clinic services
Anyone can avail of a Memory Clinic service. However, most clinics only accept
referrals from GPs or other medical doctors. Therefore, if you believe that your
memory is not as sharp as before and if you are worried about this, you should
discuss the matter with your GP. Your GP will assess the situation and may refer
you to a Memory Clinic if that is necessary. Most Memory Clinics cater to people of
all ages and many will also assess people with an intellectual disability.
Information usually sought includes questions about the person’s general health;
the nature of the memory problems and when they started; risk factors for
Alzheimer’s disease and other dementias such as family history, smoking, obesity,
diabetes, and hypertension.
6
Do all people who attend a Memory Clinic receive a diagnosis?
Generally, everybody who attends a Memory Clinic receives feedback on the results
of the formal assessment. Results may suggest a number of things. For example,
they could show that a person has a subjective memory complaint or that they
have a mild cognitive impairment (a problem with memory or cognition that is not
normal for one's age and education) or they could indicate that the person has a
dementia.
l Lifestyle advice
7
What treatments and services are offered at Memory Clinics?
Treatments and services offered at Memory Clinics vary and ideally they should be
tailored to the needs of each individual. The available drug treatments can be
effective in the short-term and may help to stabilise the condition for a period of
time but it needs to be remembered that the drugs are not curative and do not
tackle the underlying cause of the condition. These drugs can have modest benefits
but unfortunately not everybody will benefit from them.
Other interventions that do not involve medications might also be offered through
Memory Clinic services. Such interventions include information, counselling and
advice on practical everyday aids designed to help improve quality of life. Some
services may offer interventions such as Cognitive Stimulation Therapy or cognitive
rehabilitation.
8
1
CoNNACHt
Memory Clinic, Roscommon Hospital,
Roscommon
Location and Contact: Memory Clinic, Roscommon Hospital, Athlone Rd,
Roscommon Tel: 090 663 2206
Funding: HSE
9
2
DubLIN LeINSteR
bloomfield Hospital Memory Clinic, Dublin
Location and Contact: Bloomfield Hospital, Stocking Lane, Rathfarnham,
Dublin 16 Tel: 01 495 6800
Profile: The Bloomfield Memory Clinic is a multi-disciplinary, consultant-
led service providing assessment, diagnosis and support to those
presenting with memory or neurocognitive difficulties in adults aged over
18 including those with learning difficulties. Full consultation entails three
separate outpatient visits to the clinic for initial interview, full
neuropsychological assessment and feedback of results and treatment plan
Costs: There is a set cost for each assessment, which consists of three
outpatient appointments. Most scans will be covered by private insurers
10
3
Funding: HSE
11
4
12
5
13
6
Funding: Private
14
7
Funding: HSE
Staff: There are no dedicated staff for the memory clinic. Staff provide
support for this and other clinics as part of the Day Hospital. The current
staffing excluding the medical staff is: 3 x administration staff, 1 x Clinical
Nurse Manager (II), 1 x Clinical Nurse Manager (I), 1 x Staff Nurse
15
8
Funding: HSE
16
9
Funding: Private
Costs: On application
17
10
Referral: GP
Funding: HSE
18
11
Frequency: Weekly
Costs: Initial outpatient assessment in the Dean Clinic is free of charge but
a refundable deposit is required. The two-day inpatient assessment is
funded by private Health Insurers
19
12
Funding: HSE
Services available to people under 65: No. People under the age of 65 are
referred to the neurology service
20
13
Funding: HSE
21
14
LeINSteR
Memory Clinic, Sacred Heart Hospital, Carlow
Location and Contact: Memory Clinic, Day Hospital, Sacred Heart Hospital,
Old Dublin Road, Carlow Tel: 059 913 6492 or 059 913 6300
Referral: Geriatrician
Funding: HSE
22
15
Frequency: The Memory Clinic meets once a month to discuss cases, with
a focus on consensus diagnosis and recommending treatment and
supports, and to process new referrals. Additional case conferences and
meetings with service users and their carers are scheduled on other days,
as needed, with the participation of members of the Memory Clinic.
Assessments are conducted by relevant members of the team, outside of
the meetings above, based on demand for assessments and clinician
availability. Memory Clinic duties form a component of each member’s
larger role within the service
23
Post-diagnostic support: Available post-diagnostic supports include
access to the St. John of God Liffey Services multi-disciplinary team
meetings (Psychology, Psychiatry, Social Work, Speech and Language
Therapist, Occupational Therapist, Physiotherapist, Clinical Nurse Specialist),
pastoral care, multi-disciplinary team meetings with staff and family carers,
referral to community services, and dementia awareness training for day
and residential service care staff
24
16
Referral: GP
Funding: HSE
25
17
Funding: HSE
26
18
Funding: HSE
27
19
Funding: HSE
28
Post-diagnostic support: Senior Social Worker/Psychologist offers post-
diagnostic counselling if required and to all people under 65 years and their
families. Clients can attend the six week Memory Strategy Group or the nine
week Living Well with Dementia group depending on suitability
29
20
Funding: HSE
30
21
Funding: HSE
31
22
Funding: HSE
32
23
MuNSteR
Geriatricians Memory Clinic,
St Finbarr's Hospital, Cork
Location and Contact: Assessment and Treatment Centre, St Finbarr's
Hospital, Douglas Rd, Cork Tel: 021 492 3298
Profile: To assist, support and diagnose the older adult with cognitive
impairment whose cognitive changes affect their daily functioning
Funding: HSE
Services available to people under 65: This will depend on the referral
33
24
Catchment area: Co. Limerick, South Tipperary, North Kerry, North Cork
Funding: HSE
34
25
Funding: HSE
35
Location of Memory
Clinics in Ireland
Derry
Donegal
1. Memory Clinic, Roscommon Antrim
Hospital, Roscommon
Tyrone
2. Bloomfield Hospital, Memory Clinic,
Dublin Leitrim Armagh Down
Fermanagh
36
Summary
Most experts in the field agree that the early assessment and diagnosis of dementia
is essential for the treatment and support of both the individual with cognitive
impairment and their families. As the Irish National Dementia Strategy
acknowledges GPs play a key role in the diagnosing of dementia "a confirmatory
definitive diagnosis and identification of the dementia sub-type remains a
specialist task." As a result there is a need for memory clinic services and this
demand is likely to increase.
In Northern Ireland there are memory clinics in each of the five Health and Social
Care Trusts and despite complaints over waiting times for appointments they have
achieved a 75% diagnosis rate. (Alzheimer Research UK). In the Republic of Ireland
the situation is much different.
A recent review looking at Memory Clinics in Ireland (Fagan, 2017) has shown that
Memory Clinics are not available in every HSE Community Health Organisation
area and there is considerable variability across existing clinics, in relation to
staffing composition, frequency of service, resources and costs.
Our ageing population and the increasing numbers of people likely to develop a
dementia in the future means there is an urgent need to invest into the expansion
and enhancement of these important services.
37
Finally, many people still believe that memory loss and cognitive problems are a
normal part of ageing and do not know they can seek medical help. Others delay
making an appointment to see a doctor because they have a fear of being given a
diagnosis of dementia.
In fact, memory problems can result from a variety of medical conditions and
making an appointment with a family doctor to discuss concerns about memory
loss is the first step towards getting an accurate diagnosis. Pending the GP’s
assessment and decision, a referral to a Memory Clinic may help to rule out the
existence of other conditions, to identify the dementia subtype or provide
treatments and strategies to reduce significant memory problems in the future.
This booklet has attempted to bring together all available information on Memory
Clinic services in Ireland. It is hoped it will be a useful resource to both the public
and to health service professionals.
38
References
Alzheimer's Research UK Dementia Statistics Hub
https://www.dementiastatistics.org/statistics/diagnoses-in-the-uk/
Lindesay, J., Marudkar, M., Van Diepen, E. and Wilcock, G. (2002) ‘The second
Leicester survey of Memory Clinics in the British Isles’, International Journal of
Geriatric Psychiatry, 17: 41-47.
Moniz-Cook, E. and Woods, R.T. (1997) ‘The role of Memory Clinics and
psychosocial intervention in the early stages of dementia’, International
Journal of Geriatric Psychiatry, 12: 1143-1145.
39
Acknowledgements
Thank you to the National Dementia Office who carried out the initial data
collection for this booklet.
A Masters thesis titled 'An Exploration of Memory Clinic Services in the Republic of
Ireland' was undertaken by Laura Maher in 2009. The thesis collated information
for the first time in Ireland on the topic of Memory Clinics and facilitated the initial
publication of this booklet. The authors would like to thank Laura Maher for her
work in this area. Thanks are also extended to all the Memory Clinic staff who
completed the questionnaires.
Authors
Matthew Gibb and Dr Emer Begley.
Many thanks to Associate Professor Suzanne Cahill, Vanessa Moore and Dr Maria
Pierce for their work on previous iterations of this booklet.
The HSE’s National Dementia Office (NDO) was established in 2015. The NDO
provides leadership at a system level, with a role and function to oversee the
implementation, monitoring, and ongoing evaluation of the National Dementia
Strategy.
The vision of the office is that people with dementia and their family carers receive
the supports and services they need to fulfil their potential and to maintain their
identity, resilience and dignity as valued and active citizens in society.
40
useful websites
l www.alzheimer.ie
l www.alzheimercafe.ie
l www.dementia.ie
l www.understandtogether.ie
l www.hse.ie
l www.memoryclinics.ie
41
Notes
42
www.dementia.ie
www.memoryclinics.ie
www.understandtogether.ie