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Macular Degeneration Caregiving | BrightFocus Foundation

Living and learning to cope with low vision can be very difficult. Those who are visually impaired may feel depressed and isolated. They can become frustrated because routine tasks may now be hard to accomplish. Sports, hobbies and other leisure activities sometimes seem almost impossible.

Being a Caregiver

When a loved one is visually impaired, family and friends may not be sure what type of assistance is needed or desired, and consequently, they may overprotect or withdraw.

Grandparents spending time with their granddaughter.

Family and friends may find it useful to divide up these responsibilities if they are asked or want to volunteer to help.

Those with low vision need to openly communicate and ask for help if necessary but also assert their independence. Frank discussion among everyone affected often leads to better understanding.

These responsibilities may include:

  • adapting the home and ensuring it is safe
  • running errands
  • making and keeping medical and other types of appointments
  • helping with meals
  • house cleaning and other tasks,
  • social activities
  • outings
A couple smiling at each other in a park.

Finding Support

The key for the visually impaired is to try taking on challenges and resolving problems without becoming overwhelmed by negative emotions. Ironically, to remain as independent as possible requires a team effort.

This team effort should include professionals such as:

  • physicians and visual rehabilitation specialists
  • community volunteers
  • loved ones.
Looking up at the top of a building and a blue sky.

There are a number of low vision organizations for macular degeneration and glaucoma that provide resources and assistance. Many companies offer a variety of low vision aids for daily activities, and print and audio materials are available for the visually impaired, sometimes at little or no cost. For those with limited resources, it's possible to find financial aid to defray medical and other costs.

 

 

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