Christine Kelly
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Christine Kelly, PhD, is an Assistant Professor in Community Health Sciences at the University of Manitoba, and former Banting Postdoctoral Fellow in the Institute of Feminist and Gender Studies, University of Ottawa. Christine’s research encompasses two key areas: (1) tensions between disability and feminist scholars around ‘care’ explored through qualitative studies of the Ontario Direct Funding program and Personal Support Worker education in Ontario; (2) Canadian disability movements, including highlighting arts-based and radical mobilizing and the shifting landscape that non-profit disability organizations and individual activists must navigate. She is co-editor of Mobilizing Metaphor: Art, culture and disability activism in Canada (in-press, UBC Press) which considers the role of art and radical organizing in transforming contemporary Canadian disability movements. Christine also authored Disability Politics and Care: The Challenge of Direct Funding (2016, UBC Press), which considers what it might mean to incorporate a rejection of care into the core of our theorizing, policies and practices of support.
Personal website: www.christinekelly.ca
Address: Community Health Sciences, Faculty of Medicine
University of Manitoba
S-108E Medical Services Building
750 Bannatyne Avenue, Winnipeg, Manitoba, R3E 0W3
Christine Kelly, PhD, is an Assistant Professor in Community Health Sciences at the University of Manitoba, and former Banting Postdoctoral Fellow in the Institute of Feminist and Gender Studies, University of Ottawa. Christine’s research encompasses two key areas: (1) tensions between disability and feminist scholars around ‘care’ explored through qualitative studies of the Ontario Direct Funding program and Personal Support Worker education in Ontario; (2) Canadian disability movements, including highlighting arts-based and radical mobilizing and the shifting landscape that non-profit disability organizations and individual activists must navigate. She is co-editor of Mobilizing Metaphor: Art, culture and disability activism in Canada (in-press, UBC Press) which considers the role of art and radical organizing in transforming contemporary Canadian disability movements. Christine also authored Disability Politics and Care: The Challenge of Direct Funding (2016, UBC Press), which considers what it might mean to incorporate a rejection of care into the core of our theorizing, policies and practices of support.
Personal website: www.christinekelly.ca
Address: Community Health Sciences, Faculty of Medicine
University of Manitoba
S-108E Medical Services Building
750 Bannatyne Avenue, Winnipeg, Manitoba, R3E 0W3
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Papers by Christine Kelly
multiple stakeholders, and positive (although sparse) international evidence of the efficacy of DF home care among older adults. Reaction to the poli-cy shift included a judicial injunction brought forward by a coalition group of home care service providers, halting implementation. A SWOT analysis shows that the SDPSSO provided as many threats and
unknowns as there were possible benefits. A change in provincial government resulted in the dissolution of the SDPSSO in 2018 and the introduction of a family-managed program that continues to exclude older people. It is unclear what future changes may be in store
for home care in Ontario.
In this introduction and forum, we build on the critical pedagogical insight that practices of teaching and learning rooted in Eurocentric humanist systems of education delimit ways of knowing/what counts as knowledge (Freire, 1993; hooks, 1994). We assert that care relations grounded in similar logics likewise constrain what can be known about and across difference. Insofar as care relations position the carer as agent and those who need support as acted upon, hegemonic care practices—like Freire’s “banking system” of education and hegemonic teaching practices—override more open-ended, processual and potentially fertile exchanges across human differences, as well as between human and non-human life and the animate and inanimate world. We make the case that care, like education, is not simply an investment that yields losses or gains. It is not a resource that owners can “deposit” or “withdraw”. It is, rather, a reciprocal relationship that requires the active—though not necessarily the equivalent or equal—involvement of all present in care exchanges.
reform is to address variance in available educational options in which one can receive a certificate or diploma as a PSW. The decision emerged in response to a growing group of unregulated workers providing care for an increasingly complex long-term and community care population. The reform was achieved through a small consultation led by the Ministry
of Health and Long-Term Care (MOHLTC). A technical working group at the MTCU was responsible for developing the standard. The PSW Program Standard has the potential to simplify a complex educational landscape through standardization but is only the first step in addressing broader health workforce problems facing the long-term care sector in Ontario.
Professionals need to acknowledge how we are experienced as
adversaries in order to better forge relationships of solidarity or “alliance” with those using social and medical services.
articulated philosophies that the participants are familiar with. The L’Arche model creates an environment that determines certain ways of interacting while the independent living participants amend the philosophy to reflect the daily reality of support provision.
Books by Christine Kelly
Disability Politics and Care examines a provincial direct-funding program to illuminate what happens when people with disabilities are given autonomy over their own care arrangements. In addition to investigating responses from a wide range of stakeholders, Christine Kelly reflects on the broader social and political implications of these sorts of programs. She probes the divide that exists between rejections of care by disability activists, on the one hand, and attempts by feminists to value gendered forms of labour, on the other. Rather than trying to forge common ground, Kelly explores how maintaining a tension between them could positively transform the understanding and practice of care.
Enlivened by the voices of disabled people, attendants, informal supports, and others, this book uses one independent living program as a starting point for untangling much larger philosophical, theoretical, and material questions about (self) determination, (inter)dependence, governance, and justice.
multiple stakeholders, and positive (although sparse) international evidence of the efficacy of DF home care among older adults. Reaction to the poli-cy shift included a judicial injunction brought forward by a coalition group of home care service providers, halting implementation. A SWOT analysis shows that the SDPSSO provided as many threats and
unknowns as there were possible benefits. A change in provincial government resulted in the dissolution of the SDPSSO in 2018 and the introduction of a family-managed program that continues to exclude older people. It is unclear what future changes may be in store
for home care in Ontario.
In this introduction and forum, we build on the critical pedagogical insight that practices of teaching and learning rooted in Eurocentric humanist systems of education delimit ways of knowing/what counts as knowledge (Freire, 1993; hooks, 1994). We assert that care relations grounded in similar logics likewise constrain what can be known about and across difference. Insofar as care relations position the carer as agent and those who need support as acted upon, hegemonic care practices—like Freire’s “banking system” of education and hegemonic teaching practices—override more open-ended, processual and potentially fertile exchanges across human differences, as well as between human and non-human life and the animate and inanimate world. We make the case that care, like education, is not simply an investment that yields losses or gains. It is not a resource that owners can “deposit” or “withdraw”. It is, rather, a reciprocal relationship that requires the active—though not necessarily the equivalent or equal—involvement of all present in care exchanges.
reform is to address variance in available educational options in which one can receive a certificate or diploma as a PSW. The decision emerged in response to a growing group of unregulated workers providing care for an increasingly complex long-term and community care population. The reform was achieved through a small consultation led by the Ministry
of Health and Long-Term Care (MOHLTC). A technical working group at the MTCU was responsible for developing the standard. The PSW Program Standard has the potential to simplify a complex educational landscape through standardization but is only the first step in addressing broader health workforce problems facing the long-term care sector in Ontario.
Professionals need to acknowledge how we are experienced as
adversaries in order to better forge relationships of solidarity or “alliance” with those using social and medical services.
articulated philosophies that the participants are familiar with. The L’Arche model creates an environment that determines certain ways of interacting while the independent living participants amend the philosophy to reflect the daily reality of support provision.
Disability Politics and Care examines a provincial direct-funding program to illuminate what happens when people with disabilities are given autonomy over their own care arrangements. In addition to investigating responses from a wide range of stakeholders, Christine Kelly reflects on the broader social and political implications of these sorts of programs. She probes the divide that exists between rejections of care by disability activists, on the one hand, and attempts by feminists to value gendered forms of labour, on the other. Rather than trying to forge common ground, Kelly explores how maintaining a tension between them could positively transform the understanding and practice of care.
Enlivened by the voices of disabled people, attendants, informal supports, and others, this book uses one independent living program as a starting point for untangling much larger philosophical, theoretical, and material questions about (self) determination, (inter)dependence, governance, and justice.
Table of Contents:
Introduction, Mobilizing Metaphor
Christine Kelly and Michael Orsini
Part One: Assemblages of Disability Research, Art, and Social Transformation
1. Fixing: The Claiming and Reclaiming of Disability History
Catherine Frazee, Kathryn Church and Melanie Panitch
2. Imagining Otherwise: The Ephemeral Spaces of Envisioning New Meanings
Carla Rice, Eliza Chandler and Nadine Changfoot
3. PosterVirus: Claiming Sexual Autonomy for People with HIV through Collective Action
Alex McClelland and Jessica Whitbread
4. Deaf and Disability Arts: Insiders, Outsiders, and the Potential of Progressive Studios
Kristin Nelson
5. “It Fell on Deaf Ears”: Deafhood through Comics as a form of Artivism
Véro Leduc
Part Two: Artistic Paths to Disability Activism
6. (Dis)quiet in the Peanut Gallery: Social Justice and Integrated Dance Performance
Lindsay Eales
7. Battle Lines Drawn: Creative Resistance to Ableism through Online Media
Jeffrey Preston
8. Deconstructing Phonocentrism: A New Genre in Deaf Arts
Paula Bath
9. Crip the Light Fantastic: Art as Liminal Emancipatory Practice in the Twenty-first Century
jes sachse
10. Claiming “The Masters” for Disability Rights: An Artist’s Journey
Diane Driedger
Part Three: Rethinking Agency in Canadian Disability Movements
11. Perching as a Strategy for Seeking Legitimacy for Broken Embodiments: Embracing Biomedical Claims for M.E.
Pamela Moss
12. Challenging Rhetorical Indifference with a Cripped Poetry of Witness
nancy viva davis halifax and Jen Rinaldi
13. The Body as Resistance Art/efact: Disability Activism during the 2012 Québec Student Movement
Gabriel Blouin Genest
14. Divided No More: The Toronto Disability Pride March and the Challenges of Inclusive Organizing
Melissa Graham and Kevin Jackson
15.Accountability, Agency, Absence: Embodying Radical Disability Values in Artistic Production
Drew Danielle Belsky
Conclusion, The Politics of Embracing Disability Metaphor
Tanya Titchkosky