Neurofibromatosis nf nf1 endnf special needs rare disease awareness advocacy

My cousin posted this on Facebook. I'm not sure of it's origins but I just had to share :)

A mother's real life look at PTSD. Special Needs Parents and PTSD: This Is What Happens

The isolation is real for parents of special needs chidren. We need to face the facts and recognize what life has in store, and find ways to cope, and help others help us as well.

I had to chuckle a little when I saw this quote come up in my FB feed. I think it accurately describes what we special needs parents feel at times. Our lives are so complex and so confusing that those who haven't walked this road must wonder at us sometimes! Even as I chuckled, I had to admit it was 100% spot on. For many of us, our children's disabilities are hidden and no one knows what goes on inside the walls of our homes. Explaining a complex, invisible disability is hard. I often find…

{My dear readers, this post is not directly related to my life. Our situation has been different from some of the other parents I have worked with or counselled over the years. Although I speak the truth in this post, Paul and I did hear a lot of the same things many other parents heard and had to deal with on a regular basis. For us, our child had an injury so there was always hope of a excellent recovery. We had to deal with other types of comments....ones that were meant to make us feel…

a special place for special needs

Special Needs poem by April Vernon, featured on Fearless Homeschool

Use this resource to help children appreciate how special and amazing they are. Finishing the sentence starters in the balloons will help them realise they have many special qualities and talents, and are valued by others.

Copied from: An Open Letter from an Autistic Child in Meltdown, Written by an Autistic Adult Who Still Melts Down From Time to Time To Anyone Who Is Concerned, Thank you for being concerned; it means you care about me and my family. But I notice you don’t understand what is happening, so I wanted to…