Self-Advocacy Curriculum
Self-Advocacy Curriculum
Self-Advocacy Curriculum
Created By:
The Self Help Alliance
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Page Number
Scope / Goal / Outcomes 4
Section 1 - Introduction to Advocacy 5
Section 2 - Attitudes Necessary for Self Advocacy 14
Section 3 - Managing Emotions 23
Section 4 - Self Advocacy Skills 39
Section 5 - Communication 57
Section 6 - Knowing Your Rights 68
Section 7 - Practical Self Advocacy Skills 73
Section 8 - Overcoming Barriers 81
Section 9 - Advocacy Review 91
Goal
On completion of this workshop learners will be aware of the importance of advocating for
oneself and have exposure to some of the skills necessary to do so.
Outcomes
These outcomes build upon the belief that everyone the potential to understand the role
advocacy plays in our lives and take proactive measures continuously to get our needs met.
Upon completion of this workshop you will be able to:
Learning Outcomes
As users of mental health and addiction services, we face many obstacles in our lives, and
often we may face these obstacles alone. Therefore, it is important for us to learn to advocate
for ourselves, for others we care about, and for an improved mental health and addiction
system. Learning about advocacy will help us to identify obstacles, develop strategies to
overcome them and then implement these plans. Although we may be discouraged from
standing up for ourselves, advocacy is possible for every consumer.
Advocating for yourself is essential for two basic reasons. An obvious reason is that there are
insufficient advocacy resources to fully assist every individual with lived experience of the
mental health and addiction system. Although we may have advocates in our lives, such as
family, friends, peers, medical professionals, social workers and lawyers to help us with some
of our needs, many needs go unmet.
Mary Ellen Copeland, mental health advocate and person with lived experience, offers
another reason that self advocacy is essential: “The number one reason is that I‟m the only
person who has to live my life. Nobody else can know what I really need. Other people can
look at me and say what they think, but it is very important for me to ask for what I want.”
Even when we do have an advocate working for us, active participation in the process can
help you obtain what you want and need.
You can be an advocate for yourself, and while you may need some help along the way, it
can make you stronger and help you feel better about yourself.
You might think of yourself as a bus driver. You drive your bus and can have as many
passengers as you want. You can ask for a particular passenger to come on board, and you
can have the right to ask passengers to leave. You can ask passengers questions along the
way. You decide when you step on the break or the accelerator and what direction to steer.
You can park the bus at any time for as long as you want, so you can figure out where you
can to go next
You are capable, worthy and responsible for driving you bus, and you can take as much time
as you need along the route. You may want someone to help you navigate your way.
Sometimes it seems your road is leading nowhere. That often happens in life, and if you want,
you can choose to turn around, go back to where you started and try a new direction.
Whatever road you choose, whatever circumstances you find yourself in and whatever
challenges you face, the first objective need to be to keep yourself safe. Sometimes people
react from feelings such as anger and end up getting themselves into a new and/or difficult
situation. Think carefully before you act and get help when and where you need it.
Advocacy is speaking up for yourself or others. It is attempting to change how things work in
order to change how things are. Advocacy is empowering yourself, and a way to find your
voice when people are not paying attention to your needs and rights.
Advocacy:
“The act of pleading for, supporting, or recommending; active espousal: He was known for his
advocacy of states' rights.”
(Source: Random House dictionary)
List and discuss with your group some examples of situations in your life or in your
community you would like to advocate for:
With your group, brainstorm reasons and examples where advocacy has been
important in the world today:
Example: In the late 1800's and early 1900's, the Suffrage Movement advocated for equal
rights for women, especially giving women the right to vote.
Brainstorm ways that advocacy can be important in your life and in your community:
In order for others to know that you disagree with them or that your rights have been
disregarded, you need to tell them!
You know best what you feel, think, need and what your life situation is. Do not wait for others
speak up on your behalf – it may never happen!
The people who have the authority to make decisions over your situation may think that every
thing is fine if you do not speak up.
By speaking out, you may be helping other people in the same or similar situations.
You have a responsibility to take care of yourself. Speaking out will help you to keep your
self-respect and dignity, even if you do not always get what you want.
Remember that rules may not always be fair or suitable for you. You have the right to
question rules, as they may not apply to your situation.
What are some other reasons you can think of for becoming a Self Advocate?
By being a self advocate, you will also learn about your rights (or if your rights are being
abused), and develop your self-confidence. Self advocacy can help you realize your
strengths. You will learn new things; and knowledge is power, and the key to open new doors.
Self advocacy requires persistence but offers great rewards. Some people believe that those
who advocate for themselves are the ones who achieve the highest level of recovery.
An old adage says, “The squeaky wheel gets the grease.” People are more likely to respond
to you if they are not given the opportunity to forget about you and your situation. It is
important to remember that a polite, non-threatening manner is often responded to in the
most productive ways.
Some of the benefits of becoming an effective advocate for yourself also include learning
skills like:
Speaking and writing
Problem solving
Managing conflict
Assertiveness
Effective communicating
Leadership
Membership in a community
Advocacy at Work
I would like to share with your readers my advocacy success story, and say Thank You to [the
Self Help Alliance Advocacy Coordinator] for helping me with my situation.
I had been working at my job for many years, and one day the company nurse asked me to
come into the office. The nurse told me that my eyes were glazed and my speech was
slurred. I told them I was fine and they had no issues with my productivity, but the nurse
insisted that I go home for the day and come back the next day. I later got a call telling me
that my company had determined that I was not fit to continue working and I was suspended.
I do experience a mental health issue, and I use medication to help me. Some of the side
effects of my medication are dry mouth and watery eyes. I went to my doctor, who wrote a
note to my company explaining that I was fit and capable to work. Despite this, they refused
to let me return to work.
With the support of the Advocacy Coordinator, I contacted the Human Rights Commission.
The company was investigated and it was found that I had been discriminated against on the
basis of mental health. Although it took several months to resolve, the company was ordered
to pay me for lost wages and allowed me to return to my previous position.
– S.M.
(Source: Changing Lives, Volume 4 Issue 1)
A meeting was set with the CAS worker, the service worker, the member and myself, the Self
Help Alliance Advocacy Coordinator, at the member‟s request. The CAS worker was not able
to attend; however, we were able to explain to the service worker what the member‟s
objections to an assessment were and questioned whether the member was being
discriminated against because they had a mental health issue. I asked the service worker if
all their clients were required to have a mental health assessment. They replied no. I asked if
the member was displaying any inappropriate behaviour that would lead them to require an
assessment and the worker said no.
The assessment had been previously scheduled and was set for the next afternoon. When I
called the member the next morning to ask if they whether they wanted me to meet them at
the appointment location, I was pleasantly informed that the Children‟s Aid worker had
cancelled the assessment and no further actions would be taken.
Learning Outcomes
“Position as indicating action, feeling, or mood; as, in times of trouble let a nation preserve a
firm attitude”
(Source: http://www.selfknowledge.com/6804.htm)
The remarkable thing is that we have a choice every day of our lives
regarding the attitude we embrace for that day. We cannot change the
past. We cannot change the fact that people will act in a certain way. We
cannot change the inevitable. The only thing we can do is play on the one
string we have, and that is our attitude. I’m convinced that life is 10% what
happens to me and 90% how I react to it. And so it is with you. We are in
charge of our attitudes”.
Reflect on this quote and share your reactions with your group members.
Many of us worry that we cannot advocate for ourselves. However, anyone can be an
advocate; even a 2 year old is advocating for themselves by letting you know when they want
something. Of course, advocating is not always so simple, but time and time again, people
share stories of how they surprised themselves with their own power to advocate.
As an early step to achieving your self advocacy goals, you might need to spend some time
developing the attitudes necessary to reach those goals. For some people, it may mean being
more assertive, while for others it means taming aggressions.
Believing in Yourself
As individuals with lived experience of the mental health and addiction system, we may face
many obstacles in our lives, and sometimes we must face these obstacles alone.
“Self advocacy requires an internal belief that you are someone who is worth advocating for,”
says Clearinghouse program director Marie Verna. “As mental health consumers, we are
often led to believe that we're not worth advocating for,” she continues, “and we have to
change this belief in order to take advantage of advocacy training.”
Individuals who have been involved in self advocacy also agree that once you become
involved, the rewards multiply. Success improves your self-esteem. The more you reach out
and get what you need, the better you feel about yourself. Although self advocacy means
taking responsibility for getting what you want, it does not mean that you have to do it alone.
You can find people to help you.
Yet self-doubts creep in. Like unwelcome house guests that keep calling round simply
because you played host to them before. Doubts such as:
Can I really do this?
Other people are better, smarter, more worthy than me.
What will other people think if I do/say this?
I cannot risk failure.
Success is for others but not for the likes of me.
If you sometimes have trouble believing in yourself then read, absorb, enjoy, and practice
these self-belief tips:
One of the first steps is to re-examine and discard many of the limiting ideas you have about
yourself; ideas that you have somehow collected along the way.
In the first column, write down a few things you believe you cannot do. Now in the second
column, think of ways you could change that belief. Feel free to brainstorm with others ways
to change your belief.
I.e I will never learn to use a computer. I can take an adult computer classes at a local
community centre or job resource centre.
Tell yourself: “This is not my true voice!” Then start to challenge it and to just plain ignore it.
For example, if you know that you can be stubborn then find the positive in this. Stubbornness
used well is called single-minded determination.
If you worry a lot, know that the positive flip side of this is that you have a powerful
imagination which, in the right context, can be put to good use.
Take any negative belief you have about yourself and creatively flip it so that it becomes, in
its place, a positive resource. You will find this exercise fun to do. Ask your group for ideas if
you are having difficulties seeing the positives.
Negative Belief:
Positive Flip:
Negative Belief:
Positive Flip:
You likely will not start flying to the rescue of stranded citizens, but the pattern of superhero
powers is one of ability, courage, and competence. In one study, people who were asked to
write down as many super powers as they could think of were more likely to give to charity
months afterward. The pattern of giving to charity is that of being able. Prime your mind with
„able words‟ before you start each day.
As well as superhero powers, write all kinds of other positive characteristics (whether you
think you have them or not). Do this before you go out. For example, I might write:
I am not just asking you to focus on your own present or future qualities, just on the words.
Take a few moments writing them down each day, then a few moments to read your list.
Really reflect upon what each word means to you. You will be amazed how doing this will
powerfully prime your unconscious mind.
Think what you would say to someone you really believe in if they started showing doubts.
Sit down and say those same things to yourself. For example, if you need to confront your
doctor for not listening to your needs, you can say to yourself:
“Look, you can do this! It is natural to feel a little anxious, but that just means taking care of
yourself if important to you. Now get in there and stop whining! If the doctor does not listen,
you still do not have to fill the persciption.”
Now close your eyes and strongly imagine them dealing with the situation „heroically‟.
Imagine being them for a few moments, experiencing that time in their shoes. Keep doing this
until you notice you can start to transfer a sense of their qualities to yourself.
Self-belief does not mean arrogance or blindness to one‟s own shortcomings. Then again, it
does not mean believing that you are perfect as you are, either. Your self-belief really needs
to be focused on what you will become. An important part of self-belief comes from knowing
your weaknesses and being relaxed about them.
Self-belief gives you the freedom to make mistakes and cope with setbacks by seeing them
for what they are: temporary setbacks, not the end of the world. And something else you will
notice: As your self-belief grows, people around you start to believe in you more, too.
Once you begin to believe in yourself you will find yourself becoming more assertive. While
self-esteem is internal, assertiveness shapes the way we deal with others. It is an important
skill to learn, especially for those of us with lived experience of the mental health and
addictions system. A lack of assertiveness is a primary obstacle to obtaining the services that
we want and need. Often, individuals use anger or aggression instead of assertiveness. For
more information about aggression see pages 35 to 38.
Can you think of any thoughts, feelings or experiences from your own life that may prevent
you from acting more assertively?
Firstly, ask yourself “Why am I afraid? What is the worst that can happen?”
Secondly, ask yourself “What will happen if I choose to remain silent?” Then compare your
answers.
You may find that this specific action is not worth completing, and that is ok, just move on
to the next one!
4. Reward Yourself
Self advocacy is hard work, and you deserve to reward yourself for every success, big or
small. To help yourself make that difficult phone call, set up a reward to give yourself after
you make the call, such as a coffee date with a friend or a nice bubble bath.
Learning Outcomes
A significant part of people‟s experience is emotional and it is only when we are conscious of
this that we can live a full life. For many people there is a lack of awareness and
understanding about feelings. As this quote says: “Emotions contain wisdom greater than
reason alone.”
Here, we will explore this area and look at an approach that allows us to bring this important
part of our lives into balance with the other areas of mental, physical, and spiritual being.
Definition:
For general use the terms feelings, affect, mood, and emotions are interchangeable and refer
not to body sensations (e.g. “I feel tingly”) but to internal states such as happy and sad.
An affective state of consciousness in which happiness, sorrow, fear, hate, or the like, is
experienced, as distinguished from cognitive and volitional states of consciousness.
(Source: Random House Dictionary)
Understanding how our society and culture relates to emotions can help us understand our
own states and reactions to situations.
Our current society often values thinking over emotions. Society is generally “thought”
centered and cognitive understanding holds such a high place in our world.
Gender differences
Women and men are taught/trained to express and repress different feelings based on there
perceived value/vulnerability. This may be related to survival in primitive times and to make
the person more attractive relative to current cultural values.
For males it is common to suppress feelings of sadness, and fear. They are told to endure
pain. They may be told in childhood to “take it like a man” and “there is no need to cry over
that”. Showing fear may be seen as a sign of weakness and with any expression a person
may be labeled a “wimp”.
Women are often told it is not “lady like” to show anger. Sometimes, women are shown that
they can use being upset and crying to their advantage, for example, to get out a speeding
ticket.
Both genders are told "There's no reason to feel that way," and are encouraged to emphasize
only the cognitive experience.
How has society and gender differences affected how you express and manage your
emotions?
Ignoring and suppressing feelings, on the other hand, can and often do lead to negative
consequences:
physical illnesses (ulcers, heart attacks)
emotional conditions (depression)
avoidance behaviors (addictions)
In the United States in 1996, there were 460 million prescriptions for mood altering drugs
were written. How do you think ignoring or suppressing feelings may have factored into this
large need of mood altering drugs?
How has ignoring and suppressing your own feelings affected your life?
Feelings are a natural activity that cannot and, some say, should not be controlled.
What people can control is the behavior they engage in.
It is important to view all emotions as helpful. To label any as negative might steer people
away from learning about feelings, as they may want to avoid something labeled negative.
Emotions that are traditionally „negative‟ can warn us when a situation is headed in a direction
that may not be the best choice for us, and can motivate us to make changes.
Feelings are our own and people are entitled to them. Saying “You make me feel” may be
taken as blaming others for our emotions as well as not recognizing they belong to me.
Taking ownership of feelings involves coming to the understanding that my feeling reactions
and experiences originate within me. They may be precipitated by external experiences and it
is a more appropriate characterization and more accurate to say “When you did this” or
“When that happened” “I feel” whatever feelings arose.
“I messages” are a great way to own our feelings and still express our needs to others.
I-Messages
This is a strategy that is sometimes useful in dealing with problems that come up with various
types of people. I-messages help to reduce defensiveness in others while still allowing us to
clearly state what it is we need and how we feel.
An 'I-message' is a way to be strong without being mean (that is, assertive) when you are
angry, upset or disappointed with something another person has done, without blaming the
other for your feelings. The formula for an I-message is as follows:
The "I-message" is different from a "You-message." In a "You-message," you attack the other
person, make judgements about him or her, and sometimes even call the person names.
For example, your worker explains something in a way you do not understand. Your respond
to your worker by saying “If you don‟t want to help me, just say so! You make me so mad!”
A more assertive way to say this using an I-message is: “I feel angry when you explain things
in ways I do not understand because this is really important to me and I want to do the right
thing.”
I-Messages can also be used to express positive feelings. (For example, "I'm excited that you
are coming because we always have so much fun on your visits.")
For the following situations, write an I-message that would help express feelings without
blaming others:
1. You were expecting an important phone call regarding your advocacy claim. Your
roommate says someone called, however the message they took does not include a phone
number.
I feel
when you
because
2. You have an appointment early in the morning and are running late. Your friend borrowed
your car and brought it back on empty.
I feel
when you
because
I feel
when you
because
Even with all the words or labels we have in our language for our feelings (see the list on
page 27), all these boil down to five categories of feelings, or Feeling States.
This template charts feelings using the reality of the experience, thoughts associated with the
feeling and body states.
The technique suggests it is as simple as looking at your body sensations and/or thinking
about the situation and putting them together to guess what the simplified feeling is.
Benefits of this method are that we use a cognitive approach. This is the dominant mode of
experience for most people and valued by our culture. Sometimes people are inclined to
intellectualize this too much and so it may be necessary to test it out in a variety of situations.
Depending on the intensity of the experiences and people‟s willingness to practice they
eventually become aware and in touch with their feelings very quickly.
Either cut out the emotions below to sort into feeling state categories, or simply write beside
each face which Feeling State the face fits into. Do you think the face fits best with
Happiness, Sadness, Anger, Fear or Shame?
Remember, there is no right or wrong answer. Some feelings can fit into more than one state
according to the cause. For example, if you get your job back after being let go for mental
health reasons, you could be happy excited because you are making money again, or
nervous excited if you are not sure how your coworkers will react.
This is a model developed to help picture the interaction of the feeling states.
There is an interactive effect in emotions that acts as a layered effect. This is when the
expression of one emotion may layer or cover up an underlying emotion.
An example is anger, as it can be a secondary emotion if it is sometimes a cover up for fear.
There is also a ripple effect amongst feelings. This occurs when the intensity of feelings
associated with different situations and the behavioral reaction is out of proportion to the
situation at hand.
The common expression is something like this has been “blown out of all proportion”. It can
expand the circle outwardly toward “behaviors” or inwardly to shame.
There may be a conflicting of emotions identified by a sense of frustration where a person
may experience one or more feelings. Most often there is a belief attached to the feelings, and
when the thinking is understood, the conflicting of feelings is resolved.
Feelings and behavior: It is important to differentiate between feelings and actions and to
help people understand the difference and their awareness that people do not have to act on
their feelings regardless of the intensity.
Detachment is experiencing your feelings without allowing your feelings to control you. It is
choosing what you will do in a situation rather than having the situation dictate what you will
do. Detachment is a way to use thinking and feeling together, so that you do not let your
feeling run away with you.
Detachment means to feel what you feel but not having to act on the feeling unless you want
to. It can be like standing beside yourself and watching what you are feeling as well as
feeling it.
Detachment does not mean you pretend to feel differently than you do. It does not mean you
pretend to like something that makes you angry. Some people think detachment is being cold
or pretending not to care. Feelings are wonderful when they belong to us, when we use them
to do what we really want and choose to do.
Without detachment, you never know what you are going to do – it depends on how
you feel!
When you practice detachment, it becomes easier to do even when your emotions are very
strong.
You can practice detachment whenever you have a feeling about something or someone.
LOOK
First, you recognize the feeling – how can you be detached if you do not know what you are
detached from?
CHOOSE
If the answer to any of the questions above is “NO”, then CHOOSE to do something else
instead.
ACT
If you answered no, go back and think of something else you can do and ask the questions
again. When the answers are “YES”, then do it!
Assertiveness is not the same as aggression. You can be a persistent, tireless advocate for
yourself, but you may not do yourself any good if you shout at or insult others in the process.
Andrea Stephenson, a person with lived experience who offers advocacy training, suggests,
“Assertiveness is being able to say what you need in a respectful and dignified manner.”
When we perceive something as an injustice, our anger can help to motivate us to become
involved in self advocacy. However, it may be more beneficial not to let our anger become a
liability for us. If you are able to transfer your anger into positive behaviours, instead of
shouting or attacking the character of people, than others will be less defensive and will not
be able to use your behaviour as an excuse for denying what you want.
Anger Checklist
Check the box next to the item that pertains to you.
At work or school, you find yourself not saying what is on your mind.
When you are upset, you try to block the world out by watching TV, reading a book or
magazine, or going to sleep.
Your loved ones keep saying that you are hurting them.
(Sourece: http://www.acenterforhumanpotential.com/docs/angerchecklist.pdf)
Self Help Alliance Self-Advocacy Curriculum 35
Ways to Manage Anger
No matter you anger score on the previous checklist, it is beneficial to have anger managing
tools that you can rely on. Even the calmest person is bound to be angry sometimes!
1. Relaxation
Simple relaxation tools, such as deep breathing and relaxing imagery, can help calm down
angry feelings. There are books and courses that can teach you relaxation techniques, and
once you learn the techniques, you can call upon them in any situation.
Some simple steps you can try:
Breathe deeply, from your diaphragm; breathing from your chest will not relax you.
Picture your breath coming up from your “gut.”
Slowly repeat a calm word or phrase such as “relax,” “take it easy.” Repeat it to
yourself while breathing deeply.
Use imagery; visualize a relaxing experience, from either your memory or your
imagination.
Non-strenuous, slow yoga-like exercises can relax your muscles and make you feel
much calmer.
Practice these techniques daily. Learn to use them automatically when you are in a tense
situation.
2. Cognitive Restructuring
Simply put, this means changing the way you think. Angry people tend to curse, swear, or
speak in highly colourful terms that reflect their inner thoughts. When you are angry, your
thinking can be exaggerated and overly dramatic.
Try replacing these thoughts with more rational ones. For instance, instead of telling yourself,
“oh, it‟s awful, it‟s terrible, everything‟s ruined,” tell yourself, “it‟s frustrating, and it‟s
understandable that I‟m upset about it, but it‟s not the end of the world and getting angry is
not going to fix it anyhow.”
Be careful of words like “never” or “always” when talking about yourself or someone else.
These words are most often inaccurate and may alienate and/or humiliate people who might
otherwise be willing to work with you on a solution.
Remind yourself that getting angry is not going to fix anything, that it will not make you feel
better and can actually make you feel worse.
Logic defeats anger, because anger, even when it is justified, can quickly become irrational.
Remind yourself that the world is “not out to get you,” you are just experiencing some of the
rough spots of daily life. Do this each time you feel anger getting the best of you.
Make a plan, and check your progress along the way. Resolve to give it your best, but also do
not to punish yourself if an answer does not come right away. If you can approach it with your
best intentions and efforts and make a serious attempt to face it head-on, you will be less
likely to lose patience and fall into all-or-nothing thinking, even if the problem does not get
solved right away.
4. Better Communication
Angry people tend to jump to― and act on― conclusions, and some of those conclusions can
be very inaccurate. The first thing to do if you are in a heated discussion is slow down and
think through your responses. Do not say the first thing that comes into your head, but slow
down and think carefully about what you want to say. At the same time, listen carefully to
what the other person is saying and take your time before answering.
It is natural to get defensive when you are criticized or are not having your needs met, but do
not fight back. It may take a lot of patient questioning on your part, and it may require some
breathing space, but do not let a discussion spin out of control. Keeping your cool can keep
the situation from becoming a disastrous one.
5. Using Humor
“Silly humour” can help defuse rage in a number of ways. For one thing, it can help you get a
more balanced perspective. When you get angry and call someone a name or refer to them in
some imaginative phrase, stop and picture what that word would literally look like. If you think
of someone as a “dirt bag,” picture a large bag full of dirt sitting in their place. Do this
whenever a name comes into your head about another person. If you can, draw a picture of
what the actual thing might look like. This will take a lot of the edge off your fury; and humour
can always be relied on to help ease a tense situation.
Do not take yourself too seriously. Anger is a serious emotion, but it is often accompanied by
ideas that, if examined, can make you laugh.
Shows little or no expression Intimidates others with Shows expressions that match
expressions the message
Slouches and withdraws Stands rigidly, crosses arms, Relaxes and adopts an open
invades others' personal space posture and expressions
Agree with others, despite Only considers own feelings Speaks to the point
feelings and/or demands of others
Values self less than others Values self more than others Values self equal to others
Hurts self to avoid hurting Hurts others to avoid being Tries to hurt no one, including
others hurt self
Does not reach goals and may Reaches goals, but hurts Usually reaches goals without
not have goals others in the process alienating others.
You're okay, I'm not I'm okay, you're not I'm okay, you're okay
Do your behaviours fit into the passive or the aggressive column more than the
assertive?
If so, it may be time to take a look at your behaviours and your levels of assertiveness.
(Source: http://www.mtstcil.org/skills/assert-3.html)
Learning Outcomes
Identify the importance of advocacy related skills and how they can aid in your
personal situation (Knowledge and Attitude)
Evaluate your ability to utilize some self advocacy skills (Evaluation and Skill)
One of the exciting parts of life is the number of choices we have every day. Some decisions
are simple, like deciding what to eat for dinner or what shirt to wear. But some choices are
more challenging, and take careful thought and consideration.
When you have to make harder decisions, it can be very difficult to decide on the best choice,
and you may be plagued by indecision. You may be forced to choose between two equally
good options, or you may have to pick between two choices that both have drawbacks. You
may waver back and forth between different alternatives and may seem paralyzed to make
the decision. This is a very normal reaction to tough choices in our lives, and we all, at times,
experience a sense of being unable to decide on some option.
There is a technique that many people find useful when they are trying to make a difficult
decision or solve a problem that seems unsolvable. The technique uses a series of steps that
you can go through on your own when you have trouble making a decision, or have a
problem that needs to be solved. The technique may not work perfectly for all difficulties, but
it may help with many of the problems you are confronted with in your life.
Example: I have an arrest under the provincial Mental Health Act, which I know will show up
on my police records check, and may be an obstacle to volunteering. It is worthwhile to solve
this problem because I have a lot to offer others and want to help people.
Write down what your current situation is like and how this is different from what you
want it to be.
Pick the most important goals and differences to focus on first. Remember you are
only one person, so deal with one issue at a time!
Write down as many possible solutions as you can think of. Ask others for their ideas
as well.
Trying to solve problems is never easy, and you may have to try several solutions before one
works. Do not give up hope, because with persistence and your best effort, many difficult
decisions and problems can be made better! Remember to try to find ways to make the
situation more manageable. Take all the time you need, and take small steps.
(Adapted from: Positive Coping Skills Toolbox, VA Mental Illness Research, Education, and
Clinical Centers)
Many of us who have had experience with the mental health and addiction system often feel
unheard or powerless to find our own voice. This exercise will give you a chance to practice
using your voice without being interrupted or distracted.
The group members with a particular concern or advocacy issue create a circle in the middle
of the room, or with their back facing towards the table or centre of the circle.
The rest of the group, form a circle around the inner circle. Individuals in the inner and outer
circles should be facing each other.
For the next 10-15 minutes, the inner group will discuss their concerns while the outer group
silently observes. Do this with the following guidelines in mind:
Speakers should be as clear and specific as possible.
People in the outer circle must remain both verbally and non-verbally silent
All participants should strive to maintain a problem solving rather than an adversarial
stance.
After the first 10-15 minutes, inner and outer circles switch positions and repeat the above
process.
Once everyone has had a chance to use their voice, come back and discuss the results with
the group.
What was it like listening to another's concerns without being able to speak?
Were you able to find solutions to your concerns, either by sharing your thoughts or
hearing another's?
(Adapted from: A Handbook of Interactive Exercises for Groups, by Barlow, Blythe &
Edmonds)
On your own or with your group, describe the type of person who may be characterized as a
Chronic Complainer, an Effective Complainer and a Why Bother complainer, adding to some
of the ideas below:
10 9 8 7 6 5 4 3 2 1
Where do you fit? Mark on the line or continuum the place that seems most familiar to you.
Think of a complaint you have had in the past: would you have been more successful if you
had moved along the continuum one way or another?
When making a complaint, which of the three styles are most likely to get you what you want,
and why?
Over the next week when you complain about something, do not come from your old familiar
place – move along the continuum to the place where you can be most effective. Bring in an
example of this for your homework over the next week.
Remember, where you are on the continuum can change depending on your environment or
situation. You may be a Chronic Complainer at home with your family, but take a Why Bother
position when at work/school.
For this activity, three individuals can demonstrate to the group each of the three complaining
styles.
The facilitator or another group member will assume the role of the boss, and will respond
more or less neutrally depending on how the volunteer acts.
Scenario
Each “Complainer” is at work one afternoon when their pay cheque arrives. The amount is
lower than they thought it would be, and they think they have not been paid for the overtime
worked.
It was likely an innocent mistake, but they really need that money today.
Each individual needs to approach the boss to discuss the issue in their assigned
complaining style.
After hearing each “complainer,” which style would make you more willing to help? Explain:
Before you share your complaint, or following a failed complaint, review the following checklist
as a guide:
S – Specific/Support
Are you being specific when you explain your complaint?
Can you speak with a specific person who can change policy or decisions?
Do you have support? Have you asked friends, family or others for help or advice?
Is there a community group that could give you support?
Do you have facts and documents to support you?
M - Measurable
Is there a way to measure the result of your problem? Has it cost you money?
What will fix your complaint?
Would you be willing to compromise? By how much?
A – Achievable/Anger
Can you achieve your goal? Did you give clear, factual evidence?
Are you using your anger positively: to energize and motivate you?
Are you negatively expressing your anger: by shouting, threatening, etc.?
R –Respectful/Reasonable
Are you being respectful and courteous?
Are you treating others, as you would like to be treated?
Are your expectations reasonable?
T – Tracking
Are you tracking your progress by keeping a detailed record of all calls, letters, responses
and any other relevant items?
1. Complain all the time. Constant complaining is just whining, and makes you seem like
a kermudgin.
2. Complain without checking the facts. Do some research about the issues before you
start to complain.
3. Be non-specific: I tell my students "Don't tell me that this assignment sucks, tell me
why it sucks."
4. Complain to the wrong person. If you are not complaining to someone who can correct
the problem, the chances of correcting the problem are slim.
5. Make the complaint a personal attack. Use "I" messages to avoid criticizing directly.
See pages 28 and 29 for examples.
6. Have no suggestions as to how to fix the issue. If you are not part of the solution, you
are part of the problem.
7. Let the issue escalate. If you are proactive, maybe the problem can be fixed more
easily if it is noticed quickly.
If you can, prepare in advance. Consider your needs, and the other person's needs. Think
about possible solutions that would get more of what you both want. Be clear that your job is
to move the negotiation forward by doing some of the following:
Reframe
Ask a question to reframe (ask the question in a different way), for example, "If we
succeed in resolving this problem, what differences would you notice?"
Request checking of understanding. For example, "Can you please tell me what you
heard me say?”
Re-interpret an attack on the person as an attack on the issue.
Request something she/he said to be re-stated more positively, or as an "I" message.
See pages 28 and 29 for examples.
With a partner, act out the following situations using as many of negotiating skills as you can:
There is one special toy left you both want to purchase as a gift for a child who really
wants that toy.
Your landlord wants to go into your apartment without having given the required 24 hours
notice. You have company and do not want to be disturbed.
Conflict means a disagreement or opposing interests or ideas between people. Every conflict
is a struggle to meet people‟s goals or needs. Conflict can occur when:
Conflict management is a positive process where people work to resolve issues. Conflict is a
normal part of life because people have different and opposing goals.
Conflict should not be judged as "good" or "bad," but should be looked at from a wider
perspective that looks at the individual and society.
Conflict resolution is not just about avoiding danger, or fixing things up― it is about finding
and making the best of the opportunity that is built into the conflict.
Conflict management has a set of steps that work on the conflict in an attempt to settle it (see
next page). Conflict involves not just the real situation, but also how people understand and
feel about it.
You can develop the skills and attitudes that are needed to deal with conflicts, even difficult
ones.
1. Identify the positions of each side of the people in conflict. Choose an appropriate time
and place. Never berate a person ― this can make the situation worse. Remain focused
on the problem.
2. Learn more about the true needs and desires behind each side or person. Identify the
conflict, as you understand it. Tell your side of the story without emotion. Describe what,
not why, happened.
3. Listen fully to the other person‟s ideas and feelings about the conflict. Ask questions to get
more information and to make sure a point is clear.
5. Discuss how each solution would affect each side or person, and figure out possible
compromises.
6. Agree on a WIN/WIN solution (see next page), both sides/people get what they want.
1. Win/Lose
In this style, only one person or side gets what they want, so power is the key thing. It can be
physical power, the power of an authority, or mental power. Sometimes this style is the only
choice if there are scarce resources. It can also be the only choice if the other side or person
wants to defeat you and you have to fight back.
Think of a time you have been involved in a Win/Lose Situation. How did you feel about
the outcome?
2. Lose /Lose
In the Lose/Lose style, nobody wins. An example is family members in a conflict deciding
never to talk to each other again.
3. Compromise
In this style, both people/sides get some of what they want, but they also lose out on getting
something they really want or need. Some compromises can work out for both sides, like
agreeing with a seller on a “middle'” price for something you want to buy. The problem with
compromises is that there are many bad ones, where both sides lose.
4. Win/Win
This can be a style that results in the least amount of conflict, because both sides work
together to find a solution to get what they want. It is also called collaboration, because
people do not try to win at the cost of the other person losing. Win/Win goes beyond
compromising and lets both people or sides reach their goals or needs. Working together
means you can be creative in finding the best solution for a conflict or problem.
Sometimes it can be helpful to explore the other person„s interests and think about what you
would do in their situation. This can be helpful because you may find out that your interests,
wants or needs are not that different from the other person„s. You may also discover you
have some interests in common, and that there may not be a conflict at all.
There is a story about two people in a kitchen. There is only one orange left and both of them
wanted it. After arguing, they decided to stop and listen to each other‟s point of view. They
discovered that their needs are complimentary: one person just wanted the orange peel to
use for baking, and the other person wanted the inside of the orange to eat. The conflict
ended and both people got what they wanted.
Even if your needs and the needs of the other person as not as easily met as with the orange,
understanding the others perspective may help in many ways; you may be able to think of a
wider variety of situations and be able to show true compassion towards the other person.
Kindness and understanding always leads to the best outcomes.
In the following situations, think about what the other person‟s feelings or thoughts may be.
You may choose to share your answers with the group:
You are driving on a busy street, and a red sports car cuts you off. Put yourself in the
other driver's shoes
You are a worker for a social service agency who really wants to help people. However,
the policies and finances of your organization limit your ability to help as much as you
would like.
Learning Outcomes
Non-verbal communication is the act of saying what is on your mind without speaking
words. Examples of this include facial gestures (smiling, frowning), body language (arms
crossed, giving someone the "finger", legs shaking resembling nervousness, sitting upright
giving someone their full attention), and the impression you give to others with your
appearance (dress, body image, body odor).
Also, the tone of your voice can be expressed non-verbally. For instance, if you are saying
one thing, but your tone of voice is saying another, then that reflects how you are truly feeling
without speaking a word about it (yelling and crying while saying your okay).
Verbal communication is the act of saying what iss on your mind with words. This form of
communication is often taken for granted..such as saying regretful things and opening your
mouth before thinking about what you are saying.
(Source: http://www.relationship-with-self.com/definitionofcommunication.html)
Such messages can have a devastating affect on the other person's self image. They may
lead to similar responses back and decrease the likelihood of other's being willing to help
you get what you need. Instead of the person being able to clearly and realistically look at
your situation, they will instead become defensive and unwilling to listen to your concerns.
This kind of message makes the person feel bad, incompetent, or inadequate. S/he may
respond defensively – after all, no one likes to be wrong! Evaluation such as this cuts off
communication.
These kinds of responses bring in the threat power. They produce resentment, anger,
resistance and rebellion. They invite the person to do exactly what s/he is being warned
not to do.
This makes the person feel guilty and inadequate. The person may really dig in and prefer
to not help you solve your problem. When a person is feeling like they are being told what
to do or how to do their job, they are less likely to want to help.
In addition to provoking active resistance and rebellion, these responses may frighten the
person. They may also produce resentment; no one likes to be ordered around.
Responses like this imply that you think you are superior to the person. They will bring
forth defensiveness and counter-arguments and they may cause the person to defend
his/her position more strongly. Remember, having logic on your side does not always
bring forth compliance or agreement. Nor does your proving something right make it right
for the other person.
To tell someone what their “real” feelings or motivations are is threatening if you are right,
leaving them to feel exposed and naked. If you are wrong, it is unfair, resulting in
resistance and anger from the other person. Again, this response implies you think you
are superior.
Of course when you are advocating for yourself, it is important to ask questions. However,
if you ask too many questions at a time, without allowing the other person time to respond,
it can lead to frustration and resistance. These responses convey a lack of trust on your
part.
It is important to let the other person know what you need from them and hope to gain
from the exchange. However, when you give advice, you are implying that you think you
are superior to the person on the receiving end.
This kind of response communicates that you are not interested in what the other person
has to say and that you are not taking the meeting seriously.
Although it is important to show appreciation when someone is able to help you get what
you need, you do not want to sound patronizing or condescending.
While these responses may be very well intended, the person will probably feel that you
do not understand them. Also, in terms of advocacy situations, it is not your job to console
the other person; it is your job to get the answers you need.
S.O.L.E.R.
Paraphrasing
This means restating a message, but usually with fewer words. Where possible try and get
more to the point. The purpose of paraphrasing is:
To test your understanding of what you heard.
To communicate that you are trying to understand what is being said. If you are
successful, paraphrasing indicates that you are following the speaker‟s verbal
explorations and that you are beginning to understand the basic message.
Clarifying
Clarifying is the process of bringing vague material into sharper focus. The purpose of
clarifying is:
To untangle unclear or wrong listener interpretation.
To get more information
To help the speaker see other points of view
To identify what was said
Example: “I‟m confused; let me try to sate what I think you were trying to say…”
Example: “Let me see if I‟ve got it straight. You said that you love your children and that they
are very important to you. At the same time you can‟t stand being with them. Is that what you
are saying?”
Summarizing
This is pulling together, organizing, and integrating the major aspects of your dialogue. Pay
attention to various themes and emotional overtones. Put key ideas and feelings into broad
statements. DO NOT add new ideas. The purpose of summarizing is:
To give a sense of movement and accomplishment in the exchange
To establish a basis for further discussion.
To pull together major ideas, facts, and feelings
Example: “We‟re going all over the map this morning. If I understand you correctly…”
One person reads the instructions to the group, while the group listens and follows along.
Each listener needs a piece of paper and a pair of scissors.
Read the following instructions exactly as they are, without and discussing or explaining (you
may repeat a line if needed):
Why do you think you were unable to end up with exactly the same doilies when you were all
listening to the same instructions?
2. When you are not talking, think about what you are going to say next
On occasion, even the best talker among us either runs out of things to say or is rudely
interrupted. When this happens, be prepared to jump right in to step 2. As soon as your
mouth stops moving start thinking about how to resume talking. It is that simple.
You may want to consider bobbing your head up and down a few times while you are
thinking. If you are not careful, the speaker will notice that you are not listening, and will ask
you a question for which you are unprepared. Then you will be stuck stammering some sort of
answer.
3. Interrupt Frequently
Once you have figured out what you want to say next, then you are ready for step 3,
interruption. Interruption takes two major forms: 1) finishing the speaker's sentence and
2) just doing it. Finishing the speaker's sentence is particularly effective since it brings closure
to their thought and demonstrates that you understand it completely.
Just starting to talk is usually best done when the speaker is forced to take a breath. This
way, you are not both talking at the same time, which becomes a nasty battle of the talking
wills. Remember, others want to talk as much as you do. If you give them a chance, they will
just keep talking forever.
4. Look Away
Whether you are talking or not, you always have one tool at your disposal, avoiding eye
contact. This prevents the speaker from getting non-verbal feedback indicating that you are
not listening. Some like to just stare, unfocused into space. Some poor listeners prefer to
silently hunt the room for more important or attractive people. There is always someone better
to talk to. If you must look at the speaker, focus on some odd aspect of their appearance, like
a piece of spinach between their teeth.
Eye Contact:
a) suggests that you are attending to what is being communicated
b) best if natural and direct without constituting a stare
c) comparatively constant – frequent breaks in eye contact suggest inattention
d) is most likely to be interrupted when a break in discussion occurs or when either party
is thinking
Body Posture:
a) best if natural, attentive, and relaxed.
b) gestures should be easy and natural
c) facial expression should be appropriate to the material under discussion
d) leaning slightly towards the speaker with arms uncrossed suggests interest and
attention
Verbal Responses:
a) made in a warm and expressive tone, at an appropriate pace, and communicate
involvement
b) follow from the person's comments
c) try not change the subject or interrupt the person
d) relate to concerns expressed previously by the person when the topic is being
discussed is exhausted
e) made with regard to both verbal (content and tone) and the non-verbal (glances,
gestures, and other physical reactions) behaviours of the person
Silences:
a) may occur, since people often need time to think
b) are often a positive form of communication
1. Find a public place where people tend to congregate, like a plaza, shopping center, cafe
or bar. OR Have a few group members role play a conversation. OR You can play a video
on mute.
2. Take note of peoples' body language, and see if you can capture the essence of their
emotion by drawing simple stick figures.
3. Limiting yourself to simple stick figures will help you focus on gesture and pose, rather
than getting caught up in the details.
Doing this will improve your skills of observation, improve your sketching skills, and also fine-
tune your ability to "read" the body language of others.
(Source: http://communicationnation.blogspot.com/2005/12/visual-thinking-practice-body-
language.html)
Learning Outcomes
What is right?
There are two important things you should know:
What your rights are.
Which resources are available to assist you if your rights are violated.
What is fair?
There can be a difference between the law, and what you think may or may not be fair. But
remember that life is not always fair. You can still work to get justice for yourself, or find the
best solution possible for you.
Most modern democratic countries have statements of the rights and responsibilities of its
citizens. The United Nations organization has a Universal Declaration of Human Rights that it
expects all participating countries to follow. To read more about the Universal Declaration of
Human Rights, please visit http://www.un.org/en/documents/udhr/.
In Canada, this document guarantees personal human rights and freedoms. Everyone has
the following fundamental freedoms:
Freedom of conscience and religion
Freedom of thought, belief, opinion and expression, including freedom of the press and
other communication media
Freedom of peaceful assembly
Freedom of association
Freedom of discrimination
There are so many reasons and issues that would create the need for a person to advocate
for themselves, so many reasons that no one place can list all of them. The best way to know
your rights is to do your research.
List key words to help you look up information about the topic.
Make a list of possible sources that can answer your questions. This can include local
legal services, advocacy supports or organizations.
Know that in Canada, most Codes, Acts, Laws, by-laws, and more are available free on
the internet
Learning Outcomes
Most of us know how to use a telephone, but we can learn to use it more effectively as a tool
for getting what we want. Many people – understandably – lose patience when dealing with
large bureaucracies such as insurance companies or government agencies: more and more,
callers must navigate automated menus before reaching a live person. Some people have
feelings of fear or anxiety when making phone calls. However, we all can work to improve our
telephone skills.
Phone Manners
Resolving a problem by phone is often the quickest and most straightforward way to resolve a
problem. However, the process still takes some time and can cause frustration. If you are
able to keep in control and avoid getting angry with delays and frustrations, then you will be a
much more effective advocate for yourself.
Eventually, you will make it past the pre-recorded messages and press the right keys to get to
the correct department. When you finally do reach a live voice, it may be a lower-level
employee who may not have the authority to resolve your request.
No matter how frustrated or upset you feel, refrain from screaming at the person on the other
end of the line. Your ability to handle your anger may have an impact on how well (or poorly)
the organization resolves your problem. The person will probably be able to understand your
situation more easily if they can understand what you are saying and be more willing to help
you get what you need.
Telephone Tips!
Plan the call. Always jot down key objectives before making a call. What are you trying to
accomplish?What outcomes are you expecting? How will you deal with objections? By
setting an agenda, you are showing respect to the person you are calling and
acknowledging his or her busy schedule.
Know who you are calling. Getting a person's name right and understand the person's
position in the organization is critical. This way you can have a better idea of what they
may be able to do for you, and can later thank or make complaints about the individual.
Be polite. This should be obvious, but being polite does not just mean treating the person
you are calling with respect. This should extend to the person answering the phone or to
the message that you leave on voice mail. Many business people rely on voice mail to
screen calls, and your approach can make the difference as to whether or not they return
your call. Be careful to keep your tone of voice modulated and never indicate impatience
at having to leave a message. If the technology allows, review your message before
hitting "send." Many systems allow for you to erase and re-record your message.
Introduce yourself. Make sure that your party knows who you are and the nature of your
call. This applies whether you reach the person's voice mail or connect in person. Speak
clearly and slowly.
Listen. Allow the person you are calling to ask questions and convey his or her point of
view. Do not interrupt, and answer questions honestly and directly. Even if you are met
with objections, allow the individual to finish before jumping in with your defense. Be
courteous and check your attitude frequently. Indicate that you are listening by saying, "I
see," "I understand," or simply, "Yes." However, be sure to refrain from other comments
until the individual is finished.
Ask open-ended questions. Encourage a free flow of dialogue by asking questions that
require the person to respond fully. You can learn a lot from this type of exchange and this
often leads to further discussion.
Be patient. Never try to rush a call, and allow the individual to fully express his or her
opinions, reactions, etc.
Know when to end the call. There is generally a point at which it becomes clear that the
call should be concluded, and trying to extend the call to reach additional objectives can
be counterproductive. Sometimes the person you have called may seem to want to extend
the conversation, and you will need to politely conclude the conversation without offending
the individual. Use positive statements such as "I know you are busy, and want to thank
you for your time," to politely signal the end of the conversation.
Being able to write a short, direct, and assertive letter can aid your advocacy efforts. Writing
letters is a skill to be learned, and fortunately it is easier that almost any other writing style.
Keep in mind the shorter the letter, the better!
April 1, 20--
I understand that the building has a 'no pets' policy; however, health care professionals have
recommended that I use a service animal for emotional support. I would be happy to provide
written documentation of my need and my provider‟s recommendations.
Please contact me within ten days to let me know whether my request has been granted, as I
need to proceed with finding a suitable service dog. You may reach me by telephone at
(555)555-2525. Thank you for your prompt consideration of my request.
Sincerely,
Elizabeth Martin
For some forms of self-advocacy, such as participating in your own health care decisions, in-
person advocacy is inevitable. Some advocates think that meeting face-to-face with the
person you are trying to influence is the most effective way to advocate. By working to
improve your in person advocacy skills, you can help overcome the anxiety that many people
experience when preparing for a meeting.
Steps:
1. Write down the appointment details as soon as you have scheduled it and keep this
information in convenient place. Include date, time, and location, name of contact person,
directions and any other relevant information. Although this is simple step, it is extremely
important.
2. Ask for information that will help you prepare when you are scheduling the meeting. Is
there any type of documentation you will need to bring along? Do you need to meet
certain qualifications in order to get what you are asking for? Make sure all parties clearly
understand the purpose of the meeting.
3. Find a friend to come with you. Although it is helpful to have someone who knows
something about advocacy, it is not necessary. Your friend can act as a support and also
a witness to what happens in the meeting.
4. Think about what could happen in the meeting. Ask yourself the following questions:
What do I want to happen at the meeting?
What do I want to learn at the meeting?
What could happen as a result of the meeting?
By knowing these things, you can better think through your strategy.
5. Prepare an agenda for what you would like to say, what you would like to ask the other
person, and how you would respond to the other party's suggestion of what they would
like to happen. Bring a copy of this agenda with you, and if appropriate, copies for the
other parties as well.
6. Bring photocopies of all relevant documents, including any laws or regulations that apply
to your situation. Demonstrating that you know your rights makes it much more difficult for
your rights to be ignored!
7. Keep the appointment. Remember that the person you are meeting with has other
commitments. Not keeping appointments gives people a reason to focus their time to
other people and work.
8. Call in advance to cancel or reschedule if you absolutely cannot make the appointment.
Give as much notice as possible; you should not cancel the same day unless it is a
sudden, unanticipated emergency.
The most important first step of a successful meeting is to show up on time! Once you are
there, you have many tactics you can use to improve your chances of a successful outcome.
Although some of these skills require practice, learning them will help you be a much more
effective self-advocate.
Body Language
In an ideal world, justice and fairness would govern everyone‟s actions. However, in the real
world, people will judge you for how you present yourself at a meeting, which can greatly
impact the outcome. Using positive body language conveys confidence and assertiveness.
Here are some examples of positive body language:
Dress and groom yourself appropriately for the meeting. Poor grooming or sloppy
dress can leave a negative impression, regardless of anything else. If you dress nicely,
people will treat you with more respect.
Do your best to maintain eye contact. Although difficult if you are feeling shy or
nervous, maintaining eye contact helps you maintain control over the meeting. You do
not need to 'stare down' the other person, but do look the other person in the eye when
they are talking.
Use good posture. By sitting up straight in your chair, you show respect for the other
person and also convey confidence in what you are seeking.
Practice these skills. Before an important meeting, you can practice your body
language with a friend or in front of a mirror. If you do not demonstrate positive body
language naturally, you can improve with practice!
When you are meeting with someone, active listening can mean the difference between being
spoken to and 'spoken at'. Active listening means that you take steps to find out the
information you need, rather than simply hearing the words.
Listening Tips
Clarify Language– if the person uses jargon or abbreviations you do not understand be
sure to ask what they mean.
Example: “We don't usually hear about these types of situations until the DDM has
contacted us”
If you do not know what the DDM is, ask! If you try to find out after the meeting, you may
miss important opportunities during the discussion.
Restate a person's position to make sure that you both understand what the person is
offering or requiring.
Example: “So what you are saying is that I should contact the DDM to ask them to review
my case before we can proceed.”
Clarify Reactions – ask questions if you do not understand a person's reaction to what
you say. Someone may reply “I see”, but what they really mean “I see that you are being
difficult.” When someone is being vague, do not guess, ask!
Record what went on during the meeting and share your notes with all parties to make
sure you clearly heard what was being said. Be sure to write down:
o any promises that you or the other person made
o any actions you must take
o any explanations the person makes for granting or denying your requests
o anything the person says in support of your position
You may also choose to use an audio recording device to keep an exact record of the
meeting. Be sure to ask for permission before recording.
Learning Outcomes
You may find both internal (personal) and external barriers when being a self advocate, and
are dealing with a problem or conflict. It can be very helpful to look at the barriers being faced
in your circumstances.
Any of these barriers can stop you from moving forward. So, start from where you are and
know that with time and help you can overcome any barrier, maybe by taking small steps. At
the very least, you can present your case in the best way.
External Barriers
These are barriers that come from outside of us. They can include bureaucratic requirements
like costs, or documents that are written in a way that are hard for you to easily understand.
List some External Barriers you or others in your group are facing:
There are many reasons why you may feel that you cannot advocate for yourself. Listed
below are just a few reasons we tell ourselves why we cannot stand up for what we believe
in, or change a situation that may be unfair. Unfairness may have a negative impact on us or
on people we know, and may cause us to let others have power over us. You may feel that
you can not change things because:
You do not have control over your life.
It is too hard to change your situation.
Nothing you do will make a difference.
The 'System' is just too big and powerful.
No one cares, or really understands you or your situation.
You are caught in a situation not of your own making.
You are being discriminated against because of your mental health issues.
What are some other reason's you may not want to advocate for yourself?
All of us face barrier from time to time, especially when it comes to self advocacy. Most often,
it was a barrier that encouraged us to advocate in the first place. The following two articles
will talk about naming barriers we face and prioritizing our problems so that we may cope with
them more effectively.
Prioritizing the barriers you face will help you in dealing with your advocacy issues. It will help
you map out what the known and perceived outcomes may be; thereby giving you the
information you need to be successful.
Example: You were fired from you job for mental health reasons
1. Look into financial assistance
2. Make sure you can meet the basic needs for you and your family
3. Find out what laws, acts or codes relate to your situation
4. Do you have supports to help you?
5. Do you need legal representation?
Preparing for these things will help make the situation easier to cope with. The more
information you receive, the less anxiety.
A barrier is something that stops you from doing what it is you want to do. People encounter
barriers in every aspect of their daily lives. Some problems can be overcome with patience
and time, while others are much larger and require time, effort (be it monetary, physical or
emotional), and a great deal of planning.
Often it is helpful to identify the barriers that you are facing then create a plan to help break
down those barriers. Sometimes the barriers or issues that you face are easily identified,
while others are easily overlooked. Let us look at the barriers that you or I may be facing and
how we may overcome them.
Below is a list of possible barriers that you may face in any given situation. It may not include
all barriers but it gives a starting point in which to be totally honest and open about what those
barriers are and what we may be actually facing. Place a check by each of the issues that
may be a barrier to reaching your advocacy goals. Some individuals may check off every
item, and some only a few. Feel free to write down any others that come to mind.
Following the checklist are questions that may help to access where you are in your life.
These are for your own personal file. It will help you to see what direction it is that you need to
go in to resolve those barriers. Keep this checklist on file and use it later as a guide or gauge
to see how far you have come.
other
(Source: Project Dandelion Advocacy Skills Manual, A Self-Help Guide for People in
Transition. http://www.nls.org/pdf/dandman.pdf)
Self Help Alliance Self-Advocacy Curriculum 85
Not All Problems are Created Equal
Take a look at the list of barriers that you have just filled out. Looking at this list, we can see
items that can wait, and items that need to change right away. There also may be barriers
that can turn into opportunities. Prioritizing your barriers means that you can decide what has
the most importance in your life right now and what can wait.
By knowing what barriers are the most important and by careful planning we will be able to
concentrate on those that need immediate attention. By working on those of top priority you
could inevitably end up working on or even solving other issues along the way.
(Source: Project Dandelion, Advocacy Skills Manual. A Self-Help Guide for People in
Transition. http://www.nls.org/pdf/dandman.pdf)
Return to the checklist and prioritize the barriers that you are facing towards your advocacy
goals. Use the categories that were described on the previous page. It may be easily
apparent what issues are of top priority, or it may be difficult to categorize. Giving a number
rank to you barriers to rank each problem in order of priority may be easier.
Once you have identified and prioritized your barriers, you can more clearly see the next step
and begin your advocacy journey.
(Source: Project Dandelion, Advocacy Skills Manual. A Self-Help Guide for People in
Transition. http://www.nls.org/pdf/dandman.pdf)
Has learned helplessness been present in your own life? In what ways?
Following is a list of destructive behaviours that can block your ability to advocate for yourself
or others. If one or more of these behaviours related to your own situation, then it is time to
stop getting in your own way.
Are there any other times when you get in your own way?
Overcoming learned helplessness requires patience and dedication. Getting over a deeply
believed sense of futility is no easy task. Indeed, it may require changing both external
situations as well as internal beliefs.
If you suffer from learned helplessness, here are some helpful steps you can take:
Learned helplessness can be very subtle. Because the feeling is so interwoven with our deep
beliefs about our worth and abilities, it can be a challenge to overcome. Like any similar
psychological phenomenon, feelings of futility can become such a habit that we do not
recognize that we are involved in a self-defeating process. Learned helplessness can be
overcome, however, with time, patience, vigilance, and compassion towards oneself.
What are some things you can do to overcome your own sense of helplessness?
Believe in yourself.
The first step to becoming an effective self-advocate is to believe in yourself. Believing in
yourself means you are aware of your strengths, know that you are worthwhile, and are
willing to take good care of yourself. Many people who have troubling emotional symptoms or
who have a disability struggle with self-esteem. To ask for what you need and want and to
protect yourself when others treat you badly, you will need to support your self-worth. You will
want to assess, appreciate, support, and improve the way you feel about yourself.
Assess: On a 1-10 scale, what is your self-esteem? If you are undecided, give
yourself a 5.
Appreciate: Give yourself credit for as much self-esteem as you do have. It can be
really hard to hold one's own in the world, and you deserve appreciation for every point
you have been able to hold on to. Forgive yourself for the points that lie between you
and a 10. You have done the best you can. Also give yourself credit for reading this
workbook.
Support: What do you do for yourself that supports your well being? Write down those
things, like eating well, making sure you have fun regularly, or pursuing your goals.
Write only the good things you do right now, appreciate yourself for them, and vow to
continue.
Improve: Think of something you would like to change to improve your well being. It
can be just one small thing that is easy for to stop doing or begin to do; such as
exercising more, signing up for a class, or watching less television. It may even be
getting out of bed. Sometimes deciding is enough, but here, it is helpful to make a
step-by-step plan of how you are going to change, if you need to.
Your list of what you need and want may be very long. In order to make your list more
manageable, answer the questions below:
Which of these things could you achieve, or try to achieve by advocating or speaking
out for yourself? Circle those.
Which of your circled needs and wants is most important to you? Put #1 beside that
want or need. Number the others in order of priority. For instance, your #1 might be
going back to school. Your #2 might be getting a better job and #3 might be making
more money.
Through this simple process you have identified your needs or goals, and how important they
are to you in your life. It would be overwhelming to begin working on all of your goals at the
same time. Start working on meeting these needs and goals by beginning with your top
priority. After you have met that goal, or are coming along well with that one, you can begin
work on another need or goal.
Keep in mind that your needs and goals may change from time to time. What seems like a
high priority now may not seem like such a high priority in several months, when something
else may have taken precedence over it.
Once you have the facts you think you need, write them down or make copies, and keep
them in a safe place where you know you can find the information when you need it.
Gather support.
It is easier and usually more effective to work on getting what you want and need for yourself
if you have the support of one or several friends, family members, or health care providers.
You may even want to start or join a group of people with issues similar to yours such as a
self help or peer support group. If necessary, call your protection and advocacy organization
for support. A good supporter is someone who:
you like, respect, and trust; and who likes, respects, and trusts you
allows you the space to change, grow, make decisions, and even mistakes
listens to you, and shares with you both the good and the bad times
respects your need for confidentiality, so you can tell them anything
lets you freely express your feelings and emotions without judging, teasing, or
criticizing
gives you good advice when you want and ask for it
assists you in taking action that will help you feel better, and works with you to figure
out what to do in difficult situations
accepts help from you when they need it
you want to be with, but do not desperately need to be with
does not ever take advantage of you
Tell them you are working on becoming a better advocate for yourself. Ask them if they would
be willing to help you in this effort by listening to you, giving you feedback from time to time,
and being with you when you are taking some difficult steps. Make a list of your supporters
contact information and post it in a convenient place where you can easily find these phone
numbers when you need them. However, do not overwhelm your supporters with your
problems and needs, and be there for them when they need your help.
Keep in mind that even the very best friend may inadvertently let you down from time to time.
No one is perfect. Try to forget the incident and continue with the good relationship you have.
In the process of advocating for myself, I will keep calm because this increases my
effectiveness. In the process of advocating for myself, I am committed to speaking out and
also respecting the rights of others and listening to what they have to say.
I will be firm and persistent. I will stick with it until I get what I need for myself.
(Adapted from: Source “Speaking Out For Yourself, A Self-Help Guide. Substance Abuse and
Mental Health Services Administration's National Mental Health Information Center)
Self advocacy is acting to influence people, agencies, and sometimes, policies. This may
seem to be more of a challenge than you want to attempt. But what do you have to lose?
Doing Nothing
You may be afraid that if you speak out about your situation, things may become more
difficult or that you will be looked as a 'problem.' If you do not let people know what your
situation is and how you want it improved, things will likely stay the same.
Ask yourself if you want to stay where you are. Ask yourself:
“Will things get worse if I do not do anything? If things will stay the same, is that OK with
me?”
Overcoming Inertia or Fear
Sometimes you may feel tired and it can be challenging to get the energy to advocate for
yourself. Know when you have reached your limit. If you have, it may be a good time to ask
someone to help you. If you are afraid, you can still act, and see what happens. It is a risk,
but you are worth it.
Stay Calm
No matter how upset you may be or how badly you have been treated, try to stay calm. It may
help to talk with someone about what happened to upset you, like a friend, family member, or
a professional. They can offer support and advice. Find an appropriate person you can
express your feelings to, but try to remain calm when trying to get your needs met.
Being calm helps when dealing with people because if you are calm, they will likely stay calm
too. But if you are angry or aggressive, for example, people will respond to you differently,
maybe in ways that will not help you meet your needs or get what you want.
Keep At It
Do not give up once you have started. Remember that you have the right to ask for what you
want or need. And you have the right to:
Speak to someone who has the authority to make decisions.
Be treated as a competent individual.
Read a recovery book
You can find out how others have dealt with similar situations, discover ideas that might help
or learn some new skills.
Go to a group
Self help or peer support groups are places to share experiences, strengths and hopes.
People in these groups can offer practical tools and provide you with a variety of supports and
information.
Use community resources or your own resources
Your resources may include: family and friends, distress centres, crisis or distress lines, radio
or TV talk shows, videos, the internet, journaling, doing household chores, or doing
something you enjoy. Exercise is a great stress reducer, even just going for a walk.
Other options are resources in the community like counselling, guidance, a mentor, a teacher,
a facilitator, a hospital, a mental health clinic, or a self-help or peer support organization.
By filling out this page, we can learn what you found to be most helpful about this workshop
and what areas of the workshop could use more development.
What did you find most useful about the Self Advocacy workshop?
Were the groups facilitated in a way that was suitable to you? Please explain.
Was there anything you were hoping to lean from the workshop that was not discussed?