Annual-Report-2019-20
Annual-Report-2019-20
Annual-Report-2019-20
2019-20
VOLUNTEERING AT
MISSIONARIES OF CHARITY
THE GENESIS OF
GENESIS FOUNDATION
Sheela Ravi
(name changed) (name changed)
The story of two young and vulnerable lives shaped one powerful vision - no child should die because
of a lack of funds.
A structure was then shaped in the form of Genesis Foundation, to give more children a chance at life.
Lesser privileged families of children suffering from life-threatening ailments could not fight for the
basic right of medical care alone.
We work together as a community to give them the life they deserve.
2
The Foundation began helping children from lesser
“Love is a fruit in season at all times, and privileged families with different medical ailments.
within reach of every hand.” But as we began getting more cases of Congenital
Heart Defects, we realised how underserved it is in
– Saint Mother Teresa India. It is one of the most common causes for infant
mortality and yet there is an extreme lack of
On many occasions in life, we deny ourselves our grief awareness. We narrowed the Foundation’s support
and in turn deny ourselves our healing. But for us, the exclusively to the treatment of Congenital Heart
acceptance of our grief changed the course of our Defects (CHD) because most times a single medical
lives, helping innumerable other hearts heal along intervention fixes the issue - saving or completely
with ours. transforming a child’s life and in turn the family’s
fortunes as the child can lead a near-normal life.
3
In 2019-20, we supported some extraordinary kids in We sincerely believe that with heartening support
their journey for a healthier future. In a first such case from like-minded individuals, voluntary organizations,
in the world, 17-year-old girl Mythili underwent a doctors, hospitals, CSR partners and donors, every
‘double switch surgery’ using a rarely conducted, child can be given a new lease of life. Through your
Ozaki technique on the right chambers of her heart. contributions we have built a community of believers
Moreover, Baby of Benacir Banu, at 5 days old, who are assisting us in our mission.
became the second youngest beneficiary supported
by us for a pacemaker implantation. An ‘India devoid of CHD related deaths’ is a dream that
we’re pursuing - one child at a time. We hope that by
If one could measure impact in any way through the financially aiding adequate paediatric cardiac care to
work that our team does it would be by counting the the most vulnerable and marginalised sections of the
smiles of the families we support. Not only that, in society, we’re a little closer in our intention to Save
2019-20, through 5 screening camps that were held in Little Hearts.
the hinterland like Cuddalore, Nalgonda, Gorakhpur
etc., we were able to counsel families for corrective Our hearts are full of gratitude with the loads of love
surgeries for their young ones. We cannot thank our poured into the lives of countless children through
doctors and hospitals enough for making these camps Genesis Foundation. And for that we thank you.
possible. Our partnership with the Rotary Club of
Meenambakkam helped over 70 children in getting Sincerely
access to healthcare.
4
who screen all the medical documents and also do a
The Noble Workers: Genesis Foundation thorough socio-economic check on the families.
in caring for Children with Congenital Their support for emergency procedures, even in the
Heart Defects middle of the night is remarkable. They keep in mind
the interest of the patient and the family. At G.
Genesis Foundation was established in 2001 by Mrs. Kuppuswamy Naidu Memorial Hospital (GKNM),
Prema and Mr. Jyoti Sagar to the memory of their Coimbatore, Tamil Nadu – a dedicated pediatric and
second son who lost his life due to a congenital heart congenital heart surgery unit was established in 2014.
disease as an infant in 1983. It is a pure We have a well-established infrastructure to provide
Non-Governmental and not-for-profit organization. for all kinds of surgical care for children. The main
Since their establishment, they have supported limiting factor for us at GKNM has been tackling
thousands of critically ill children to undergo affordability for families where a child requires heart
life-saving treatment across India. surgery. As treating surgeons, we find it extremely
difficult to carry out the necessary surgery for such
The incidence of children being born with Congenital needy children, in view of financial constraints.
Heart Defects is about 1 in every 100 live births. Among This is where Genesis Foundation steps in and are
these children with congenital heart disease, 25% of always willing to extend their help. Their support
children need surgical or catheter-based intervention extends to even 100% of the cost of the required
within the first year of life (critical congenital heart cardiac surgery if the family cannot contribute
disease) otherwise they will die. In India, anything. I can honestly say that the Foundation wipes
unfortunately most of the congenital heart diseases away tears from the parent’s eyes and gives them an
are prevalent in the lower socioeconomic group. everlasting smile.
Together, we have supported close to 100 children
since establishing partnership in 2019, which has
included very complex cardiac surgeries with the help
of surgeons from America (Dr Chris Baird, a cardiac
surgeon from Boston). Most of the children
undergoing treatment with support from the
Foundation are fully cured. They are thriving as they
lead a normal, or near normal life, with no need for
taking long-term medication. All they need is regular
follow-up with a cardiologist and they can grow to be
very productive in the future, integrated well back into
society.
The estimated cost for the child to undergo cardiac We, at GKNM Hospital, feel very proud to be in
surgery is somewhere between Rs 150,000 to 500,000 partnership with the Foundation and are waiting to
Lakhs or $2000-7000 (USD), based on the underlying take care of many more children born with a heart
cardiac condition. It is very difficult and almost ailment. We appreciate and sincerely thank all the
impossible for the low- or middle-income parents to philanthropists and organizers of the Foundation, as
arrange money needed for the surgery. Unfortunately, together we aim to transform the lives of children
most of our parents don’t have any health insurance. suffering from congenital heart defects in India.
5
The life of every child is precious; no child should die due to a
lack of funds for treatment of Congenital Heart Defects (CHD). We
OUR envision an India devoid of deaths caused due to CHD because of
VISION lack of awareness, diagnosis or resources. An India, where every
child lives life to the fullest.
Children with
congenital heart
OUR To Save Little OUR defects who belong to
MISSION Hearts BENEFICIARIES families with an
income of Rs 10,000 or
less per month.
100% of donations
Integrity from individual donors
Equality OUR are used towards treat-
OUR Transformation
VALUES COMMITMENT ment of children with
Trustworthiness no allocation towards
Collaboration overheads.
GF is registered under Sections 12-A and 80-G of the Income Tax Act, which entitles 50% tax
exemption to donors who are residents of India. GF is also registered under FCRA allowing it to
receive foreign funds. For donors who are residents of the United States of America (USA), we
have Genesis Foundation India Fund for GF Kids with Charities Aid Foundation of America
(CAF America) and donations to the fund are tax deductible under section 501 (c)(3). CAF
America will send an instant email tax receipt for your donation.
Other donors residing in India, will receive a soft copy receipt for donation amount (hard
copy is provided upon request).
6
Surgeries in neonates and small weight finances and need additional financial support from
various sources.
babies suffering from Congenital Heart
At KIMS Hospitals, we are very fortunate to be
Diseases: The challenges and need for associated with Genesis Foundation for the last three
financial support years. Genesis Foundation has been extremely helpful
to address the financial needs of low-income families
It is a well-known fact that operating on a small for doing complex cardiac surgery.
weight baby/neonate with a congenital heart disease
is a challenge. In the present-day practice, more For this reason, we were able to help and bailout
focused sub-specialties have emerged in this field that several families in need with the timely help that was
include pediatric/neonatal cardiac surgery, pediatric obtained from the Genesis Foundation.
cardiology, pediatric cardiac anesthesia, critical care
and pediatric cardiac perfusion technology. Apart
from the surgical skill and expertise required, accurate
diagnosis by the pediatric cardiologist, careful
intraoperative anaesthesia, perfusion management
and postoperative critical care are equally important
to run a successful neonatal cardiac surgical program.
7
Congenital Heart Defects & Challenges
with Pediatric Cardiac Care
Congenital Heart Defects (CHD) are the most
frequently occurring congenital disorder. With rapid
advances in diagnosis and treatment of CHD, the vast
majority of children born with CHD in high-income
countries reach adulthood. However, this is not the
same story for children born in
low-and-middle-income countries (LMIC), as such
advanced care is not available for all children.
8
An Overview 2019-20
608
children supported
48 %
of the children treated
were suffering from
complex Congenital
Heart Defects
9
53 % BOYS 47 % GIRLS
We continue to The stigma of a girl child
endeavour to bridge the being a burden in India
gender gap that is widely often results in lack of
prevalent when it comes appropriate medical
to medical treatment in care, but we don’t let it
India. For the FY 2019-20, deter us in actioning our
we missed the perfect vision. Our HOPE team
balance by a few works actively with
percentage points as doctors and social
cases are prioritized on workers to ensure that
the basis of urgent families are counselled
medical need. about the gift of life
regardless of gender.
Kids Supported
70
children
Strategic Partnerships
Kids Supported
453
children 52
children
Donations
Corporate Social Responsibility (CSR)
Projects : Kids Supported
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COUNTRYWIDE REACH
New impact footprint in FY 2019-20:
North East India
States from where we have supported
LADAKH children in the FY 2019-20
JAMMU &
KASHMIR States from where we have not
HIMACHAL
supported children in the FY 2019-20
PRADESH
CHANDIGARH
PUNJAB
UTTARANCHAL
HARYANA
ARUNACHAL
DELHI PRADESH
SIKKIM
RAJASTHAN UTTAR PRADESH ASSAM
NAGALAND
BIHAR MEGHALAYA
MANIPUR
JHARKHAND TRIPURA
GUJARAT MADHYA PRADESH WEST MIZORAM
BENGAL
CHHATTISGARH
TELANGANA
GOA
KARNATAKA
ANDHRA
PRADESH
PUDUCHERRY
TAMIL NADU
KERALA ANDAMAN AND
NICOBAR ISLANDS
LAKSHADWEEP
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HOSPITALS
Our Partnerships 2019-20
Genesis Foundation partners with selected hospitals across India to ensure best class treatment for children
suffering from Congenital Heart Defects
The Foundation follows a strict selection criterion for new partnerships and only if these are adhered to do we
share our Standard Operating Procedure (SOP) Manual and start working together towards saving lives
The selection criteria includes the following mandatory requirements for a hospital:
These hospitals serve as our primary source for case referrals and many a time contribute by subsidizing
treatment costs which allows us to support more children with our donors and partners
Social workers/Doctors reach out to us with cases which require intervention and members of our HOPE team
complete all due diligence in accordance to our SOP
The hospital provides us with information filled out in our “Genesis Foundation Application Form” along with
ID proof of parents, birth certificate of beneficiary/adhaar card (mandatory for children over the age of one),
income proof of primary wage earner, colour photograph of child, medical report on hospital letterhead and
documentation detailing any pre-existing medical condition or history
In this FY we conducted 5 CHD screening camps with Amrita Institute of Medical Sciences, Krishna
Institute of Medical Sciences, Miot Hospital and Max Hospital
12
In this FY we have collaborated with 26 hospitals in total, which includes 6 new hospitals that were
added to our partnerships
LADAKH
Indraprastha Apollo Hospital, New Delhi
JAMMU & Jaypee Hospital, Noida
KASHMIR
Artemis Hospital, Gurugram
HIMACHAL
PRADESH
Narayana Health, Gurugram
CHANDIGARH
SIKKIM
RAJASTHAN UTTAR PRADESH ASSAM
NAGALAND
BIHAR MEGHALAYA
MANIPUR
JHARKHAND TRIPURA
GUJARAT MADHYA PRADESH WEST MIZORAM
BENGAL
Kokilaben Dhirubhai Ambani Hospital, Mumbai TELANGANA Narayana Multispeciality Hospital, Raipur
NEW HOSPITAL
13
GIVE
“Music acts like a magic key, to which the most tightly closed heart opens”
- Maria Von Trapp
#FeelTheHeartbeat Challenge
Click Here to
watch video
14
CHD Awareness Week (7th-14th February 2020)
We raised awareness throughout the week, leading up to Valentine’s Day through emotional and informative
content to appeal to a wider audience across digital media.
The #FindYourValentine Campaign focussed on creating memorable moments with lesser privileged children
with CHD, encouraging users and influencers to spend their valentine's day differently with ones who need the
most love and time.
15
We also rolled out two awareness films across all digital platforms.
Supported by
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OUR FUND-RAISING INITIATIVES
The GIVE program focuses on fund-raising initiatives that are curated to bring together a community of
supporters and donors with music and a common vision to make a difference, together. We believe the
language of music bonds humankind and serves as a participatory force to bring like-minded people who
pledge with us to Save Little Hearts.
In this FY, we hosted the 23rd edition of CEOs Sing for GF Kids, Bengaluru, supported by Oracle India.
Overview: 2019-20
CEOs Sing
for GF Kids
Bengaluru
23rd February, 2020
Click here to
watch videos
12
CEO singers
04
New participants
150+
attendees
7
Event partners
4
In collaboration with Little hearts saved
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It has been a privilege to be part of Genesis Foundation’s journey over the
years as they do wonderful work to change the lives of needy children. I am
happy to contribute in a small way with their fundraiser CEOs Sing for GF Kids
and other programs. May they continue to light the lives of young ones!
P Balaji
Chief Regulatory & Corporate
Affairs Officer, Vodafone Idea
A mecca for music enthusiasts interested in listening to a diverse pool of established and upcoming talent. The
festival over the years has delivered some of the most exceptional live performances - from Bryden-Parth,
Thaikkudam Bridge, Usha Uthup, Shilpa Rao, Parikrama, Sonam Kalra, Kutle Khan Sufi Collective, Rabbi
Shergill, to many more.
The festival was conceived by the Foundation in 2012, with a view to grow its community of donors and
well-wishers and of course spread the goodness of each healthy heart towards supporting the critical hearts in
need of care.
Overview: 2019-20
Click here to
watch videos
19
70+
Artists/performers
500+
attendees
20+
Event partners
26
In collaboration with Little hearts saved
Line-up
20
Supporters & Partners
VARUN BEVERAGES
Sincere pleasure to be associated with KRBF 2019 and to have met some good
souls. What you guys are doing is amazing!
- Thaikkudam Bridge
It was a privilege for Maatibaani to perform at the festival. Everything about the
festival was offered with such love and joy! There is so much to learn about the
empathy and about giving back from the Genesis Foundation team.
- Maatibaani
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SUPPORT
Supporters
& Advocates
Corporate
ENGAGE Life Project Organisations CHAMPION
Partnerships
INVOLVE
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TURNING SUPPORTERS INTO CHAMPIONS
The foundation of our NGO is formed by a community of supporters who are deeply committed to our cause. It
includes families, individuals, groups, clubs and corporations who have pledged to Save Little Hearts with us.
Through their kindness, innumerable children and their families have held on to hope.
To ensure sustainability, we continue to engage, connect, support and grow our community with supporters
who advocate for our cause- by spreading awareness and assisting financially with medical care for kids across
India.
Aara Project
In 2017, we met an inspiring couple - Priyal Guliani and Anami Bhattacharya. They had lost their daughter
Aara Bhattacharya to a Congenital Heart Defect, despite the entire family putting up a brave fight.
In trying to make sense of their grief and loss, a fundraising initiative in their daughter’s name became a
calling and together we’ve given 50 children a chance at life till date.
In the FY 2019-2020, we were able to support the surgery of 2 little hearts under this project.
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CORPORATE ORGANISATIONS
Over the years, Genesis Foundation has worked as an implementation partner with corporates in their Corpo-
rate Social Responsibility (CSR) endeavours, which helps truly co-create value for their business and the society.
Under Schedule VII of the Companies Act 2013, promoting healthcare is an area eligible to receive CSR support.
Through such mutually-beneficial relationships, we’re able to treat many more children along with creating a
community of citizens who are aware about Congenital Heart Defects.
Our project proposals are distinctive and targeted suiting the needs of diverse corporations. Moreover, all our
projects are uncomplicated and easy to execute as a turnkey CSR project.
In the FY 2019-20, 75% of the children treated were supported by our CSR partnership
with the following organisations
New
New
New
New
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HOSPITAL VISITS
Through our Volunteer Program, we ensure that our CSR partners get a chance to have active, engaging and
meaningful interactions with the little hearts they save. It helps to create a conducive environment for
participation for teams and employees of various corporations.
Ms Sarbari Ghose, Jyoti Kumari & Rachana Mr G Arunkumar & Mr R Jambunathan visited
Umberkar visited Ankush at Artemis Hospital, Mithra at Miot Hospital, Chennai.
Gurgaon.
25
Ms Chhavi Gupta visited Golu Kumar at Max Mr Pawan Tiwari visited Devraj at Apollo
Hospital, Saket. Hospital,Delhi.
Mr Shubhankar Sharma visited Anshu Pal at Ms Manpreet Kaur visited Priya Kumari at
Artemis Hospital, Gurgaon. Max Hospital, Saket.
Ms Manpreet Kaur visited Aayush Kushwaha at Mr Anuj Sharma visited Abhay Nishad at MAX
MAX Hospital, Saket. Hospital, Saket.
26
Mr Nidesh, Ms Kajal, Ms Krishna & Ms Ms Sravanthi Tadepalli & Mr Sriram Sumaithangi
Samwardhini visited Neelappa at Columbia Asia visited Maryam and her family at KIMS hospital,
Hospital, Bangalore. Hyderabad.
We’ve been partnering with Genesis Foundation since 2018 and together we’ve achieved innumer-
able heart surgeries for young kids with Congenital Heart Defects. It is a transformative and life-chang-
ing endeavor that we’re so proud to be a part of. In fact, it is a privilege for Oracle to enable this
through the funding we’re able to provide and the deep engagement that Oracle employees bring to
the table in this initiative.
There is no way that we can credit ourselves for changing lives because at the end of the day, all the
important work is being done by Genesis Foundation, but we can all get involved in individual capaci-
ties for a better tomorrow.”
Colleen Cassity
Executive Director, Corporate Citizenship
We are very proud to partner with Genesis Foundation in bringing back smiles to the little faces.
We believe that there is nothing more noble than serving society and bringing happiness in others' lives.
We highly appreciate and acknowledge the amount of dedication and effort put in by the entire team of
Genesis Foundation and Doctors associated with them in taking care of the small children suffering
from Congenital Heart Defect. We at ACRE commit our full support to Genesis Foundation in the said
noble cause of ensuring that the little hearts keep beating. Cheers to the entire team for their noble
work.”
Mohd Shariq Malik
Company Secretary & Vice President, ACRE
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One of the values of our firm, K&S Partners, is to be socially responsible. So, when we completed
25 years in 2019, we could not think of something more noble than contributing to a deserving social
cause. Having heard the inspiring story behind how Genesis Foundation (GF) was founded by our
Managing Partner Jyoti Sagar and his wife Prema, and their success stories in supporting surgeries of
children with congenital heart disease from financially weak backgrounds, we zeroed in on GF as one of
our beneficiaries. To commemorate our 25th anniversary, we, therefore, decided to fund 25 of such
surgeries. And we did help GF complete 25 surgeries in 2019-20!
In a world that needs more and more kindness, it is a heart-warming experience to help these tiny
babies and their families to hope for a better future. When we are told that a child that we supported
has received a successful surgery and is on the path to leading a normal life, it is an indescribable
feeling, which no material thing in the world can give you. We, at K&S Partners, believe that it has been
a profound privilege to be associated with GF and contributing to its noble causes. We wish GF contin-
ued success in its benevolent pursuits and hope to be always associated with its causes.”
Latha Nair
Partner, K&S Partners
Timely medical intervention for children who suffer from Congenital Heart defects, will help
reduce mortality amongst such children . ‘Save little hearts’ project by Genesis Foundation is a hope for
the survival for such terminally ill under privileged children. At HDFC ERGO, we are fortunate to have
made a difference to the lives of 23 children and their families through this project. It has been our
privilege to be part of this life changing project and we look forward to cherishing a long term relation-
ship with Genesis Foundation.”
Samir H. Shah
Executive Director & CFO, HDFC Ergo
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POWER OF 100+
Our payroll giving initiative with corporate organisations
“In every community, there is work to be done. In every nation there are
wounds to heal. In every heart, there is the power to do it.”
- M. Williamson
The payroll giving initiative of Power of 100+ brings together like minded individuals who are contributing
towards making a visible change in the state of Congenital Heart Defect treatment in India. And change is
possible with the smallest of contributions. We firmly believe that there is no such thing as a small donation,
afterall every rupee counts towards the health and well-being of a child battling a Congenital Heart Defect.
With Power of 100+, employees can voluntarily sign up to contribute INR 100 (or more) from their monthly
salaries towards the kids being financially aided by us. This helps us to build a sustained flow of funds and when
these are pooled together, it helps us save little hearts. We successfully supported 5 children and their medical
care in FY 2019-20 through funds received with Power of 100+.
“Philanthropy has always been close to my heart and I’ve always felt the need for us to do our bit towards
making this world a better place for everyone. I’ve been associated with Genesis Foundation (GF) for over 8
years now and what really appeals to me about the organization is that it truly is, “philanthropy with a
difference”. The GF Fundraisers are one of a kind which allow the entire family to come together and work
towards making a contribution to a larger cause. The GF experience for me has been an enthralling and a
fulfilling one and I look forward to many more years of working with the foundation.”
Dolly Tayal
Senior Director, Genesis BCW
“I have been supporting Genesis Foundation for some “Humanity stands for giving more than receiving.
years now and I am extremely happy with how the Genesis Foundation stands for doing and giving.
foundation is helping treat so many children, from They proved that though my contribution is nothing
the economically weaker section of the society. The more than a drop in the ocean but that tiny drop
number of kids treated by the foundation is growing matters. It gives hope to those who need it the most
every year. It gives me a lot of satisfaction and pride and blessings to us who contribute towards the
to be associated with this lovely organisation.” beautiful cause. Thank you, Genesis Foundation for
showing me that if one wants one can.”
Aseem Sood
CEO, Impact Research & Measurement Pvt Ltd Anjum Shakeel
Associate General Manager, J Sagar Associates
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LIFE PROJECT
Charities Aid Foundation America
The Life Project at Genesis Foundation was initiated when one of our connections with a community of doctors
in the United States opened doors to Charities Aid Foundation America (CAFA). It allows donors who believe in
our cause to donate from the US and contribute towards the treatment of children we support. In the FY
2019-20, 1 child was supported through the funds received from CAFA.
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Congenital Heart Defect Screening Camps
Our screening camps are organized to screen all children, aged 0-18 years for early detection and management
of heart defects. These screening camps help us penetrate into remote areas of our country and expand our
impact footprint. In FY 2019-20 we successfully conducted 5 screening camps in partnership with our network of
hospitals, their pediatric cardiology department and some of our corporate social responsibility partners.
These camps have a two-fold benefit: of raising awareness of congenital heart defects and a direct outcome for
children who are provided care at their doorstep for diagnosis and treatment. The children are identified and
families are counselled for medical intervention. Through our screening camps, we aim to reduce the child
mortality rate due to congenital heart defects and reach out to families with affordable and quality care which
otherwise would not be available or accessible to them.
402 children
were screened
11 children
were supported from 5
screening camps in
FY 2019-20.
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Nizamabad Screening Camp
In collaboration with Krishna Institute of Medical
Sciences, Hyderabad
CSR Partner
The Film
Screened – 60 children
Pooja Kamath interacting with staff nurses at
District Hospital, Nizamabad
32
Nalgonda Screening Camp
In collaboration with Krishna Institute of Medical
Sciences, Hyderabad
CSR Partner The Film
Dr Sudeep Verma
Pediatric Cardiologist,
Krishna Institute of Medical
Sciences
33
Mayuri Lala Garde is a seven-year old radiant girl with
“History will judge us by the difference a contagious smile. She is the youngest in the family of
we make in the everyday lives of Lala and Madhuri – with an elder sister and brother.
She always felt a little left out as she watched her
children” - Nelson Mandela brother and sister breeze through life with little to no
complaints, why was she struggling to even play with
The heart of our cause lies with the children we them?
support every day as we bring the community togeth-
er to help shape their future and give each one of their The family spent a lot of time running between hospi-
families a sense of assurance and the basic right to tals and local clinics, but a clear diagnosis was never
access medical care. made. One day a routine health check-up was
conducted at Mayuri’s school and the examining
Each child we support holds a special place in our doctor detected a murmur in her heart.
hearts and has a special story. However, there are a
few unforgettable cases through the year whom we Lala and Madhuri were asked to take their daughter to
said an extra prayer, as they were immensely complex Jupiter Hospital in Pune, one of our partner hospitals.
cases. The case was brought to us after the Echo test results
were revealed. Mayuri had two major ventricular
Mayuri Lala Garde septal defects. One measured 1.8cm in the posterior
muscular septum and the second was 2cm. She also
had Grade 1 straddling of the tricuspid valve. This
meant that the valve which is usually on the right side
of the heart with attachments only on this side was
located on the left side. A unique case due to the two
large holes in her heart.
34
relieved of all financial burdens for the surgery, which
Supported by was successful. She recovered slowly but surely at
home and counted days before joining school with
better health!
It brings me joy to see that Mayuri is leading a normal life again. She has
started school and now also plays with her friends. We are thankful to Dr Abhi-
jeet Naik and Genesis Foundation for giving new life to our daughter. It was
beyond our means to get Mayuri treated at a private hospital
35
Through further testing, the cause for the baby’s low She needed a permanent pacemaker, a device which
heart rate was identified but unfortunately this meant stimulates the heart to beat whenever there is a drop.
that Benacir’s subsequent pregnancies would also It would have to be placed on the baby’s heart
carry a risk of foetuses’ with CHB. through a surgery so early into the baby’s arrival. The
cost was exorbitant for the family, estimated at Rs
It was imperative for the family to 200,000. On a salary of Rs 6000 per month, it was
impossible for Mohammed Pahyas to put together the
provide the best possible care for
entire amount. He contributed Rs 50,000 and
their yet to be born baby, there was confessed to Dr Mani Ram that anything more was just
not possible.
simply no other way.
By God’s grace, Dr Mani Ram Krishna (a Pediatric The doctor reached out to us at the Foundation and
Cardiologist from Amrita Institute of Medical Sciences, we stepped forward to provide the additional funds
Kochi) was conducting an outreach clinic at RK Hospi- required for the procedure of the pacemaker with CSR
tal and he examined Benacir. She was prescribed was support from our Foundation. The baby was trans-
oral salbutamol. This had its own side-effects that had ported immediately by an ambulance to Amrita
left her experiencing tremors, but she was willing to go Institute of Medical Sciences in Kochi. A twelve hour
through whatever it took just to make sure her baby harrowing journey through roads that had been
was okay. Dr Usha continued to monitor the baby’s ravaged by the recent monsoons was a complete
progress and the beats per minute slowly improved. nightmare. Thankfully the little warrior princess
remained stable through the journey. One can never
Time went on and with bated breath, Benacir crossed question the strength, despite the dependencies such
nine months of pregnancy. She gained confidence that a little baby can have.
her little baby was destined to be with them. Delivery
was advised in a tertiary Pediatric Cardiac Care She was prepared for the surgery which started almost
Centre, but the couple had no means to afford such immediately upon her reaching Amrita Institute of
care during birth. So, Dr Sureka hence planned for an Medical Sciences in Kochi. And it was a successful one.
elective delivery by Lower Segment Caesarean Section
in Thanjavur itself. The pacemaker was implanted and Benacir and Md
Pahyas’s first born Ayisha is doing really well. She was
The family rejoiced despite knowing discharged in the last week of October and we are
proud that we have had the opportunity to play a
that there was a long and difficult pivotal role along with the doctors and hospitals to
road ahead as Benacir delivered a give this couple the one thing that they have always
wished for – a healthy baby.
baby girl, weighing 2.4kg. She was
Ayisha Noor is one of the youngest children supported
named Ayisha Noor. by us for a pacemaker implantation.
Her heart rate was low, 52 per minute and soon after
reduced again to 40. Dr Mani Ram hence placed a Supported by
catheter in the baby’s umbilical vessel and started the
baby on a special medication which helps to increase
the heart rate. At this stage, Ayisha was completely
dependent on the medicine as everytime the dose was
reduced her heart rate would plummet again.
Both my wife and I are so happy that our only child is healthy and normal now. All this
was possible because of all the doctors who helped us, especially Dr Mani Ram Krishna. We
have not seen God, but we have seen him in the form of our doctor. We thank Genesis
Foundation for helping us with the treatment of our child. Without them, we could not have
paid for it.
– Benacir Banu, mother of Ayisha
36
She resumed classes at school, until her bouts of
P Mythili breathlessness increased. Her parents knew they had
to try and find a way, they just didn’t know how. One
day, Mythili fainted at school during morning prayers.
The principal recommended that the family show her
to a private facility. They got tests done again which
showed that Mythili had a complex heart defect -
corrected transposition of great arteries with a
ventricular septal defect and pulmonary stenosis. The
family was asked to take her to a private centre, GKNM
Hospital, in Coimbatore for surgery.
37
a three-week hospital stay and her entire family were
elated. Supported by
She is doing well and even attended our CEOs Sing for
GF Kids event with her family, where she met the
representing donors for her interventions.
We never imagined that our daughter would lead a normal life again. We are
very happy and thank Dr Vijayakumar and Genesis Foundation. Without their
help it would not have been possible to get our daughter treated.
38
ambulance, due to criticality. First, he reached out to The doctors reached out to us and we pledged to save
some members of the Red Cross Society who agreed Ithika’s tiny heart with support from our CSR program.
to provide the transportation for Ithika to be shifted to
GKNM Hospital. Subhas and his mother accompanied Ithika was operated on 25th March 2020 and it went
the baby in the ambulance as Mathunika had to stay off well, she did not even need any mechanical
back with their other child. circulatory support after the surgery. She put up a
brave fight! On 31st March, she was discharged and
As soon as she arrived, she was admitted into the ICU. has been put on long-term follow-up.
Subhas confided in the doctors about his financial
predicament as they were all living off his father's Supported by
salary of Rs 3500 per month. They had no means of
arranging the full amount of Rs 3,00,000 for the
surgery. He had however pledged a small piece of land
the family owned and put together Rs 1,00,000 which
he was putting towards his daughters surgery.
39
The Rashtriya Bal Swasthya Karyakram team from
Agra reached out to our team at the Foundation who Supported by
asked the family to bring Tanveery to Artemis Hospital
in Gurugram. The Echo was repeated to ensure a clear
and final diagnosis. Dharmendar came forth about his
financial difficulties - he could not afford surgery on a
monthly income of Rs 3000 which he earned through
his humble work as a labourer.
Thank you Genesis Foundation for extending your support for our son’s
surgery. I could never have dreamt of getting him operated at a private hospital.
I am a labourer by profession. Tanveer is alive today, because of this Foundation.
40
CSR Health Impact Awards 2019
Won CSR Implementation Partner for
“Project Save Little Hearts” with
WPP India CSR Foundation
SABRE Awards
Exchange4Media’s IPRCCA, Silver - CSR & Certificate of Excellence in CSR Category 2015
Not-For-Profit Category 2015
41
In this FY 2019-20, we supported 608 children We conducted 5 CHD screening camps in Tirunelveli,
suffering from Congenital Heart Defects (CHD) Nizamabad, Nalgonda, Cuddalore and Gorakhpur,
allowing us to work at the grass-root level in areas
48% of the children supported were suffering from where speciality centres are not available and
complex CHD, which is 47% more than the previous awareness on the disease is very low
year
Through these camps, we were able to screen 402
Without emergency intervention at specialised children and provide treatment for 11 hearts who
centers in the country, these children’s survival required immediate intervention
would have been at grave risk
The Foundation won CSR implementation partner
The number of kids we have supported has grown for “Project Save Little Hearts” with WPP India CSR
by 1% Foundation at the CSR Health Impact Awards 2019
The gender ratio comprised of 53% male children Each little heart we support is special, but four
and 47% female female warriors will remain unforgettable - Mayuri
(suffered from a complex heart disorder as the
We established 4 new Corporate Social attachments of her tricuspid valve were on the left
Responsibility (CSR) partnerships with HDFC Ergo, side, instead of the right, thereby separating the
K&S Partners, EESL and Wipro GE ventricles and making the surgery extremely
complex), Ayisha (five-days-old, weighing 2.4kg, the
youngest child supported by the Foundation for a
permanent pacemaker implantation), P Mythili
Through our CSR partnerships we supported 453 (world’s first Ozaki procedure to be performed on
children, the maximum number of surgeries the right side of the heart for recreating the
were done through this stream of support pulmonary valve) and Ithika (whose left ventricle
was only pumping blood at 10 percent of its original
capacity)
As corporate donations and grants we partnered
with 2 new organisations - Client Associates and
SSG Advisors LLP with whom we were able to
treat 33 children suffering from heart disorders
42
Our board comprises of renowned doctors who advise us in new areas of treatments for Congenital Heart
Defects and share data available on Pediatric Cardiology.
Dr V Mohan Reddy
MD
Professor of Surgery
Chief, Division of Pediatric Cardiothoracic Surgery
Co-director, UCSF Pediatric Heart Center
UCSF Benioff Children’s Hospital - San Francisco
Dr R Krishna Kumar
MD, DM, FACC, FAHA
Clinical Professor & Head
Amrita Institute of Medical Sciences and Research Centre, Kochi
Dr Sreeram Narayanswami
Professor of Pediatric Cardiology and Pediatric Electrophysiology
University Hospital of Cologne, Germany
Dr K Shivaprakash
HOD
Pediatric Cardiac Sciences & Chief Pediatric and Congenital Heart Surgeon
Sir H N Reliance Foundation Hospital, Mumbai
43
Dr Balu Vaidyanathan
Clinical Professor, Pediatric Cardiology
Head, Fetal Cardiology Division
Amrita Institute of Medical Sciences
Kochi, Kerala, India
My focus area of prenatal diagnosis of critical congenital heart defects enables a planned
delivery and expedited care of neonates with critical heart defects in a tertiary paediatric cardiac
facility. In this context, GF has initiated the financial support process in the antenatal period
itself in several cases, permitting conduct of the surgical procedures very early after the
birth of the baby. This kind of fast-tracked neonatal cardiac care has been associated with
improved outcomes after surgical outcomes with an added advantage of costs saving due to
shorter hospital stay. This novel concept of planned delivery and expedited cardiac care has
been offered to more than 500 cases at AIMS over the past 10 years; GF has supported a number
of such cases in recent years, including patients from the neighbouring state of Tamil Nadu.
I would like to thank Genesis Foundation for their support in the care of our patients and I wish
them the very best in their future endeavours in supporting families with children with heart
defects.”
44
Dr M Kalyanasundaram
Pediatric Cardiologist
GKNM Hospital
Coimbatore
Ever since Genesis Foundation started supporting needy children with heart defects at GKNM
Hospital, our program has increased in volume by leaps and bounds. We are able to treat
many deserving children who are cured completely and are able to lead a normal life. These
children otherwise would not have survived. Their procedure of selecting applications for the
financial aid to really needy people is simple, hassle free and fast. Their 24 hour support to
children who need emergency surgery is exemplary. They are transparent and are easily
approachable. Genesis Foundation has been supporting open heart surgeries and device
closures at GKNM Hospital for more than a year now. I wish them all success in their noble
endeavours.”
45
Dr. Neeraj Awasthy
Principal Consultant and In charge
Department of Pediatric and Congenital Heart Disease
Max Hospital - Saket, New Delhi
The organization has been engaged in helping many needy kids with congenital heart
disease, enabling the delivery of pediatric cardiac care up to the grass root levels. The same
is evident by many camps which are supported by the Foundation and spectrum of kids which is
supported by them.
I am highly impressed by the dedication of the enthusiastic staff, each one of whom is himself a
brand ambassador of the values of empathy and care much needed for the kids and their
families with congenital heart disease. The Foundation has got a transparent but focused
selecting process and is easily approachable.
The communication of the Genesis team with the doctors, families of the kids and the kids
themselves goes beyond words to assist in the delivery of congenital cardiac care. The
association of the Genesis foundation with any kid is not only a big financial support, in fact it is
great moral support in itself for the whole family.
Thus Genesis Foundation has been a blessing for the delivery of congenital cardiac care for the
Indian population. The association has brought the smiles back to many kids with heart diseases
in the country. We are highly grateful for our association, as we strive towards a common goal to
optimize the delivery of pediatric cardiac care.”
46
Dr Rahul Saraf
Consultant Pediatric Cardiologist
Jupiter Hospital - Baner, Pune
Genesis Foundation is easily approachable and is keen on helping genuinely needy families for
treatment of their children with CHDs. It is very transparent in the selecting and processing
financial support. It has a dedicated and enthusiastic staff which has empathy towards these
children with CHDs. They communicate with families, doctors and coordinate the support
system.
Thus Genesis Foundation is helping whole heartedly to this cause of treating children with
CHDs and bringing happiness to many families across India. We are truly grateful to Team
Genesis Foundation and hope this collaboration will increase over the coming years. We are
looking forward to continuing this partnership and creating a strong support system for such
families.”
47
IN THE NEWS
STORY OF P MYTHILI
A ground-breaking heart surgery
48
TOP 10 HEADLINES
Blues No More 6
-The Tribune
49
FUNDRAISERS
D for Delhi
50
FUNDRAISERS
51
CORPORATE VOICE
Your Story
52
SCREENING CAMPS
Citizen’s Evening
Telangana Today
Praja Shakti
Andhra Prabha
Prajapaksham Telangana
Today
Siasat 53
Our Plan for 2020-21
Genesis Foundation is motivated and focused to create impact in healthcare for children who suffer from
Congenital Heart Defects (CHD) in India. Over the last two decades, major strides have been made in the
management of this disease, but there is still a long way to go. We are willing to fight for an India that is devoid
of CHD related deaths and our approach to this is through creating awareness, ensuring early detection,
intervention and funds for treatment for families who cannot afford it.
In the previous Financial Year (2018-19), we had committed to expanding our footprint by partnering with more
hospitals in untapped parts of our country, especially the North Eastern region of India, conducting more CHD
screening camps through such partnerships, sustaining existing CSR partnerships and building new ones,
spreading awareness especially through digital and electronic media, leveraging topical days such as World
Heart Day and CHD Awareness Week and enhancing our volunteering program by creating more opportunities,
all of which we succeeded in executing.
As we move forward into a new financial year and the onset of a global COVID-19
pandemic, the country has gone under lockdown as of 24th March 2020.
The future and longevity of such a crisis cannot be predicted but our mission to Save Little Hearts remains the
same and we are prepared for any hurdles that may come our way. A lockdown brings forth closed offices,
difficulties for travel and a burdened healthcare system but we are still driven by a simple thought, that life
precedes everything. If children are kept safe and given equal rights to medical care regardless of socio-eco-
nomic background, the future of our country can holistically be a promising one.
One surgery is all it takes for each child to live a close-to-normal life and pave a way for their dreams to grow
wings.
54
GIVE
CSR Partnerships & Grants
To nurture ongoing CSR partnerships, grants and seek new avenues with corporate organisations to build
a like-minded community, drive awareness and ensure a sustained flow of funds for treating more
children.
We will look at exploring innovative ways to execute activities around congenital heart defects with
partner organisations on web-platforms since events cannot be organised.
Building Awareness
To leverage topical days/weeks such as World Heart Day (29th September 2020) and CHD Awareness Week
(7th-14th February 2021) on our digital platforms to spread awareness on the work we do and the situation
at hand as India sees over 200,000 children born every year with a heart defect. During the lockdown such
platforms will be the focus for spreading the message and encouraging participation.
Volunteer Program
Instead of on-ground volunteering opportunities such as hospital visits and event support, we will give
people the opportunity to share their story, write blogs to enhance the visibility of our work and create
awareness.
THE BEAT
GOES ON
55
RECEIPTS AND EXPENSE TRENDS
7,00,00,000
6,00,00,000
5,00,00,000
4,00,00,000
3,00,00,000
2,00,00,000
1,00,00,000
56
For Programme Support
Our HOPE team identifies children who need urgent
medical attention. They also work directly with
families/guardians and doctors to ensure timely and the
best available treatment for the little hearts under our
care to ensure their beats go on.
For Events
Our GIVE programme also focuses on fund-raising
initiatives, where we are committed to raising awareness
and funds to Save Little Hearts. Do you want to support
one of our events? GENESIS FOUNDATION
c/o K & S Partners, 109, Sector 44,
If you would like to participate and start a fund-raiser Gurgaon 122 003, Haryana, India
with us.
Tel | +91 124 408 1528
Dolly Malvai | dolly.malvai@genesis-foundation.net
If you would like to sponsor an event. EMAIL US
Genesis Foundation | sponsorship@genesis-founda- contactus@genesis-foundation.net
tion.net
VISIT US
www.genesis-foundation.net
For Media
Contact: Monisa Nadeem | monisa.nadeem@gene- FOLLOW US
sis-foundation.net https://www.facebook.com/Genesisfndn/
https://www.instagram.com/genesisfndn/
For Donations
https://twitter.com/genesisfndn
Ensure that the beat goes on, donate through any one of
our online & offline platforms. Indian resident donors are https://www.linkedin.com/company/
entitled to tax benefit under Section 80G of the Income 7970581/admin/
Tax Act, 1961 (50% of the donation is tax deductible). https://www.youtube.com/user/
Donors will receive a soft copy receipt. Hard copy receipt Foundationgenesis
is provided upon request.
57
“When we give cheerfully and accept gratefully, everyone is blessed.”
- Maya Angelou
Offline
Cheque
To be issued in favour of “Genesis Foundation”
Mailed to: Genesis Foundation, C/O K&S Partners, 2nd Floor, Chimes 61, Sector 44,
Gurugram - India
Bank-to-bank Transfer
Bank Address: Ground Floor, Unit No. 4, Unitech Trade Centre, Sushant Lok - 1, Gurugram - 122001
58
Every child deserves
a chance at life