Category Archives: MultipleSclerosis.net

Trouble Swallowing Food or Drinks

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Many symptoms of multiple sclerosis (MS) are challenging to endure. For example, having difficulty swallowing is a common issue with MS. It can prevent any pleasure or comfort when eating a meal. Many people with MS report being discouraged from eating at all due to the severe pain and terror it can cause.

We reached out to the MS community to learn more. We asked, “Do you ever feel like your food gets stuck in your throat or experience other difficulties when it comes to swallowing food or drinks?”

We received 280 responses to our prompt! The MS community was moved to share their symptoms.

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MS and Sensory Overload

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One overlooked symptom of multiple sclerosis (MS) is sensory overload. Noise, lights, and crowds cause panic and lead to feeling overwhelmed. Many with MS do not realize sensory overload is a symptom. It feels confusing when it first happens.

MultipleSclerosis.net published an article about sensory overload that resonated with many readers. The insights and responses from the community are worth sharing!

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Morning Pain and MS

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Navigating pain is a consistent challenge with multiple sclerosis (MS). Nights are often not restful. Many with MS wake in pain. It is challenging to move first thing in the morning. 

MultipleSclerosis.net members recently engaged in a discussion about morning pain. Here are some of the insights they shared.

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Shared Experiences: Things Only Someone With MS Would Understand

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Living with multiple sclerosis (MS) can feel lonely. It is hard for others to understand the spectrum of MS symptoms. Fortunately, there are communities to connect with others navigating MS! It makes the journey feel less isolating. 

MultipleSclerosis.net recently posted the following:

“Fill in the blank: ______ is something that only someone with multiple sclerosis would understand.”

This question clearly resonated, as there were over 350 responses! Among the comments, some common themes emerged.

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Fear of Falling With MS

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A concern for many people with multiple sclerosis (MS) is the fear of falling. Loss of balance with this disease makes falling a common problem. But many find that slowing down, walking carefully, and learning to get up safely after a fall can be helpful.1

MulipleSclerosis.net recently published an article that highlighted some of these trials. Given the reaction it received, it clearly resonated with lots of people! Here are some of the themes that people shared in response to the article. 

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How MS Messes with Speech

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One frustrating symptom of multiple sclerosis (MS) is the cognitive impact. Those of us with MS often struggle with memory, recall, and speech. When words vanish, we get creative in communicating! 

MultipleSclerosis.net posted the following prompt to the community:

“MS can mess with our word recall and speech function, making remembering the names of people, places, and things difficult. If only there was 1 word for it all. We want to know, what would your word be? Example: ‘Can you please hand me the _____ over there?’ Philadelphia natives might throw the word ‘jawn’ in there!”

There was a lot of engagement with this topic!

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To Drive or Not to Drive With MS

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Living with multiple sclerosis (MS) changes many things in life. The impact of symptoms on the body makes certain tasks more difficult. For example, driving becomes more challenging as MS progresses. 

We recently asked the MultipleSclerosis.net community, “Has MS altered your driving habits?”

There were many insightful replies about how MS impacts whether and how a person continues driving. Some respondents still drive, and others do not. Here is some of the community’s perspective in their own words.

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What Others Should Know About MS

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Living with multiple sclerosis (MS) is full of challenges. Those without MS may not realize the ways the disease impacts life. 

MultipleSclerosis.net recently asked members of the community to “Fill in the blank: I wish more people understood ____ about MS.”

There were many insights from the responses!

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Advice for Friends and Family Supporting Someone Receiving an MS Diagnosis

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When a loved one receives a diagnosis of multiple sclerosis (MS), learning how to support them is vital. To learn what type of support people living with MS most value, we asked the MultipleSclerosis.net community:

“What advice would you give to friends and family who want to support someone receiving an MS diagnosis?”

The community shared lots of helpful insights!

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Exercising and Moving With MS

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So much can change in the body following a multiple sclerosis (MS) diagnosis. The toll MS takes on moving the body is significant. A forum on MultipleSclerois.net asked members for their insights to several questions:

  • How has MS impacted exercise or bodily movement for you?
  • Are there exercises or movements that seem to work really well for you and, alternatively, some movements that are difficult to do now?
  • Have you had to modify any movements? If so, how?
  • How do you set yourself up for success when moving your body?

There were many valuable responses!

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